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Transitions

posted Friday January 27th, 2017

We talk all the time about how tough transitions are for kids with special needs. Hard on all kids, to be sure, but particularly tough when your kid’s brain is hard-wired at the cellular level to refuse to budge when requested. Thanks a fucking lot, extra 21st chromosome. But how about how tough transitions are on […]


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  Dear administrators, teachers, and staff: Before I say anything else, thank you. Thank you for creating an incredible environment for my daughter. Two and a half years ago, I sat in the audience at Sophie’s fifth grade graduation and sobbed, convinced her education (both academic and social) had come to a halt, that we’d […]


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I am so grateful to Sophie’s teachers — past and present — and to everyone at her school (she pretty much knows them all by name!) for educating, enlightening and including my little girl. Sometimes, knowing where to begin to say “thank you” can be tough. As usual, Sophie gave me the best lesson when […]


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Thank You, Broadmor Elementary School

posted Friday May 30th, 2014

For many years, I wrote about Sophie’s school without naming it. Now that she’s finished there — moving on to junior high — I have no reason to keep the name a secret — and every reason to tell you what a fabulous place it is. Was. Is — for lots of kids. Not for […]


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This morning Sophie and I toured a charter school in downtown Phoenix, our first visit out into “the field” as we look for a junior high for her. “That was fun!” she announced when we got in the car. “Really?” I thought to myself. “Because I feel like I’ve been through a meat grinder.” The […]


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Mamas, Don't Let Your Babies Watch "Charlie Bit Me"

posted Tuesday November 25th, 2008

Ms. X did not sound pleased. “Sophie had a really bad day today,” she said. We were on the phone, but I could see her shaking her head. Sophie was out of sorts all day, in ball buster mode, totally stubborn. Refused to come in from the playground, wouldn’t listen to directions. “Oh, and she […]


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On Strawberry Milk and Playground Safety

posted Wednesday November 12th, 2008

Word around school this week is that Sophie’s been swiping other kids’ drinks at lunch. She drains her juice box and nabs someone else’s drink, particularly if it’s strawberry milk. I stuck 35 cents in this morning, so she could get her own, which she thoroughly enjoyed. I didn’t mean to be in the cafeteria during […]


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Bribing Miss Sophie

posted Tuesday November 11th, 2008

The Elmos aren’t working. Not so much, not anymore. At first, they worked so well, it seemed like a miracle. But I knew it wouldn’t last. Like most souls, Sophie is very interested in a good bribe. I see nothing wrong with that. Positive reinforcement is what it’s all about, as far as I’m concerned. […]


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I Spy

posted Monday November 3rd, 2008

I was really excited for Halloween this year, and not just for the usual reasons. I couldn’t wait for the Kindergarten Halloween Festival and, finally, a chance to spy. It’s a tradition at the girls’ school. (The festival, not the spying.) Every Halloween, all the kindergarteners — and only the kindergarteners — parade through the […]


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Someone Kick My Butt, Please

posted Thursday October 2nd, 2008

Just when I think we’re just fine, making do with what Sophie’s being handed (or not) in kindergarten, something happens to knock me off my clogs. (If you’ve never worn clogs, you won’t understand that saying.) I reconnected this week with a lovely woman in town whose daughter is just about Sophie’s age, and also has […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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