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Transitions

posted Friday January 27th, 2017

We talk all the time about how tough transitions are for kids with special needs. Hard on all kids, to be sure, but particularly tough when your kid’s brain is hard-wired at the cellular level to refuse to budge when requested. Thanks a fucking lot, extra 21st chromosome. But how about how tough transitions are on […]


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Party Hat

My Little Problem Solver

posted Friday October 5th, 2012

“Is it okay if we tell her about the underwear?” one of the teachers muttered to the other toward the tail end of Sophie’s parent/teacher conference yesterday afternoon. Underwear? Instantly, I was on high alert. (Who wouldn’t be?) It had been a pretty good conference, as far as these things go. I dread parent/teacher conferences. […]


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Party Hat

Wanted: Guardian Angel for Cute Kid with Down syndrome

posted Saturday February 21st, 2009

This morning I snuck (sneaked? snook?) out of bed, leaving both girls snoring. A real feat, the first time since Sophie’s been in her big girl bed. Every morning, it seems, she comes to us earlier. Ray calls it the “snuffle shuffle” and it’s true, she’s blessed with our noisy sinuses and who can blame […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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