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Transitions

posted Friday January 27th, 2017

We talk all the time about how tough transitions are for kids with special needs. Hard on all kids, to be sure, but particularly tough when your kid’s brain is hard-wired at the cellular level to refuse to budge when requested. Thanks a fucking lot, extra 21st chromosome. But how about how tough transitions are on […]


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Dear Sophie, You know, I have been writing this blog for the last 8 years — I started it on your fifth birthday, to document your year in kindergarten — but I’m not sure I’ve ever actually written to you, only about you. So today, in honor of your 13th birthday, I thought I’d write […]


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The Melt-in-Your-Hand IEP

posted Friday April 16th, 2010

Sophie’s IEP meeting was last week, and we’re still in the throes of finalizing/reviewing/sign-seal-and-delivering, but things seem to be falling into place. It’s such a detailed process, designed to address every possible angle of your kid and her needs, but really what I find is that it lulls you (or me, anyway) into a false […]


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Smiley Face

posted Thursday September 17th, 2009

Last night, the girls and I sat at the dining room table to do homework. Annabelle had some fancy-schmancy assignment involving decorating her spelling words (some nights it’s drawing them in a shape of pyramid or making them blocks), so once Sophie finished reading her little book, I took her spelling words off the fridge, handed […]


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"Breaking Dawn" with the Digi-Pet

posted Tuesday August 26th, 2008

I should really be asleep by now. In a few short hours, I’ve got an early morning meeting with the special education teacher at Sophie’s school — I need to try to convince her that even though my kid’s got an IQ of 86, she deserves time in the “resource room” without letting her think Sophie […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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