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The Christmas Show

posted Wednesday December 10th, 2008

“Gosh, I didn’t expect to cry,” a mom said, wiping her eyes as we walked out out of the school cafeteria after the kindergarten holiday show. “Yeah, I know,” I mumbled, grateful it was dark so she couldn’t see my own dry ones. I actually had expected to tear up, had packed extra Kleenex, but […]


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Mamas, Don't Let Your Babies Watch "Charlie Bit Me"

posted Tuesday November 25th, 2008

Ms. X did not sound pleased. “Sophie had a really bad day today,” she said. We were on the phone, but I could see her shaking her head. Sophie was out of sorts all day, in ball buster mode, totally stubborn. Refused to come in from the playground, wouldn’t listen to directions. “Oh, and she […]


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Bribing Miss Sophie

posted Tuesday November 11th, 2008

The Elmos aren’t working. Not so much, not anymore. At first, they worked so well, it seemed like a miracle. But I knew it wouldn’t last. Like most souls, Sophie is very interested in a good bribe. I see nothing wrong with that. Positive reinforcement is what it’s all about, as far as I’m concerned. […]


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I Spy

posted Monday November 3rd, 2008

I was really excited for Halloween this year, and not just for the usual reasons. I couldn’t wait for the Kindergarten Halloween Festival and, finally, a chance to spy. It’s a tradition at the girls’ school. (The festival, not the spying.) Every Halloween, all the kindergarteners — and only the kindergarteners — parade through the […]


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Someone Kick My Butt, Please

posted Thursday October 2nd, 2008

Just when I think we’re just fine, making do with what Sophie’s being handed (or not) in kindergarten, something happens to knock me off my clogs. (If you’ve never worn clogs, you won’t understand that saying.) I reconnected this week with a lovely woman in town whose daughter is just about Sophie’s age, and also has […]


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A Serenity Prayer for Parents

posted Friday September 19th, 2008

Most afternoons, the phone rings. Ms. X. swore up and down she’d keep me posted about Sophie’s trials and tribulations this year, and as far as I can tell, she’s kept the promise. The news varies. Often it involves an indiscretion or safety breach. For example, on Monday, Sophie announced to some other kids (but not […]


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Of IEP Meetings, Playground Safety and Golf Tournaments

posted Friday September 12th, 2008

Late last night, I met a friend to see the movie “Man On Wire”, about a French guy who walked a tight rope between the Twin Towers, shortly after they were built in the 1970s. It was an odd way to honor 9/11, maybe, but somehow fitting — and I was glad for the break from […]


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Sophie’s IEP is Mildly Retarded

posted Wednesday September 10th, 2008

Tomorrow’s a big day. Or not. Sophie’s IEP team is meeting, to review her first month of kindergarten. When we were putting the finishing touches on Sophie’s IEP (Individualized Education Program, the document that prescribes her school situation, from what therapies she gets to where she pees) I insisted we reassemble the team (everyone from principal […]


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Visitors

posted Thursday September 4th, 2008

Yesterday, I volunteered in Annabelle’s classroom. Really, though, I was more of a visitor. An interloper.  Special Agent Amy. (OK, too much “Harriet The Spy”.) Drama aside, there’s nothing like a little while in your kid’s classroom to tell you what’s what. For example, 20 minutes into my morning in Second Grade, I’d diagnosed every […]


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Micro-Chips for Wayward Kids with Down syndrome?

posted Thursday August 28th, 2008

At lunch yesterday, Ray and I mused about whether we should put a micro-chip in Sophie, the way people do with pets. He claims this really goes on in Russia, where kidnapping rates were so high. I brought up safeytat.com again. It was all idle chatter, til the phone rang a couple hours later. I […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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