posted Thursday October 2nd, 2008
Just when I think we’re just fine, making do with what Sophie’s being handed (or not) in kindergarten, something happens to knock me off my clogs. (If you’ve never worn clogs, you won’t understand that saying.)
I reconnected this week with a lovely woman in town whose daughter is just about Sophie’s age, and also has Down syndrome. We wrote on each other’s “walls” on Facebook (if someone can explain that whole Wall thing versus the Email thing versus Status Comments, please do, and while you’re at it, what the hell does it mean when someone Pokes you?) and swapped quick kindergarten tales.
I’ll cut to the chase. Her kid — who goes to a public school in a neighboring district — gets a personal aide in the classroom 18 hours a week! That’s huge! Sophie doesn’t get someone to walk her from the cafeteria to the playground.
Something’s wrong with this picture, and if it was in reverse, I know this lovely woman would be kicking my butt toward an advocate or a law office. I need to do something. As Sophie’s physical therapist said this morning, it’s about her safety. I don’t want to rock the boat. But how can I help it?
Damn the economic crisis — we couldn’t sell our house and move to that better district even if we wanted to. And open enrollment is not an option for special needs kids; they’re too expensive.
At least Fall Break starts tomorrow, so I can indulge in one of my favorite pasttimes: procrastination.