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Are People with Down syndrome Mentally Retarded?

posted Saturday August 2nd, 2008

Before you start pelting rotten eggs at your computer screen, let me explain. First, “mental retardation” is a medical term. The IQ cut off is 69. Seventy, and you’re not retarded. Second, I have spent much of the year considering this topic, particularly since Sophie’s IQ clocked in at 83. (This was the topic of […]


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Sophie Goes to Kindergarten: Should I Safetytat Her?

posted Saturday August 2nd, 2008

Just the weekend, then it’s kindergarten. Today was the last day of pre-school. Actually, it wasn’t, because Sophie ditched. Annabelle’s camp was done so I had a sitter anyway, and when I asked, Annabelle said she’d prefer to have Sophie stay home with her. (INSERT AUDIENCE TRACK: “AHHHHHHH”.) So we didn’t really say goodbye. That’s […]


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Sophie Goes to Kindergarten: The Pre-K Jitters

posted Tuesday July 29th, 2008

I thought I was the only one who was nervous. This morning I had a quick meeting with Gordon, Sophie’s pre-school Gordon. He has a very long beard and a very short window of time to talk — his priority is the kids, which I love. But he wanted to meet this morning to tell […]


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Have you ever had a teacher crush? I didn’t know there was such a thing til I met Ms. X. Correction: The first time I met her, it was hardly love at first sight. She terrified me. I was at our neighborhood elementary school (for the first time, that was scary enough), for an evening […]


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Hairdo(s) of the Week

posted Wednesday July 23rd, 2008

Nothing like the confirmation that your 7-year-old does most things better than you. Nine times out of 10, when I tell Sophie it’s time to do her hair, she hollers (lately she’s been looking down, stamping her foot and making a snorting noise — all too similar to a horse, I know) and refuses. The […]


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Cooking with Sophie

posted Monday July 21st, 2008

I’ll never forget that right after Sophie was born, my sister said to my mother, “Well, Amy will always have someone to get a pedicure with.” I love that line. And while it’s not always true (Sophie’s certainly not up for EVERYTHING), she’s pretty game. Yesterday afternoon I asked Annabelle if she’d like to bake […]


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(NOTE: SOPHIE’S PLAY DATE’S NAME IS SPELLED Niamh — I BOTCHED IT BELOW.) “Hey, she’s 5 and I’m 4 and I’m bigger than her!” Neve commented, not at all unkindly. Yes, I thought to myself, and in every way: Neve is an adorable, precocious little girl (little, though she probably DOES stand a head taller […]


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Party Hat

I watched it. Turned out, it was a very old tape (much heavier than current VHS tapes, which I guess are lighter because they’re getting ready to go POOF altogether, followed by DVDs, leaving me screwed) with Alfred Hitchcock’s “Notorious” taped after the 1992 documentary “Educating Peter,” which a friend had given me — she […]


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Out of the (Down syndrome) Box

posted Wednesday July 16th, 2008

I rolled over this morning and noticed it on the floor, an old VHS tape, “Educating Peter” scribbled on the label. I really should shove that in the box, I thought, rolling back the other way to avoid morning and the inevitable ouslaught in the wake of a vacation. Or, I suppose, I could watch it. Last […]


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Party Hat

High Five, Low Five, Fist Bump

posted Monday July 14th, 2008

It’s official. Our family is switching over from the high five to the fist bump. I’ll admit it, this decision was made after I read last week’s NYT magazine and learned that William Safire has noticed the fist bump, thus dragging it into the public lexicon in a way I just can’t ignore. Plus, I […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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