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Wanted: Guardian Angel for Cute Kid with Down syndrome

posted Saturday February 21st, 2009

This morning I snuck (sneaked? snook?) out of bed, leaving both girls snoring. A real feat, the first time since Sophie’s been in her big girl bed. Every morning, it seems, she comes to us earlier. Ray calls it the “snuffle shuffle” and it’s true, she’s blessed with our noisy sinuses and who can blame […]


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Are People with Down syndrome Mentally Retarded?

posted Saturday August 2nd, 2008

Before you start pelting rotten eggs at your computer screen, let me explain. First, “mental retardation” is a medical term. The IQ cut off is 69. Seventy, and you’re not retarded. Second, I have spent much of the year considering this topic, particularly since Sophie’s IQ clocked in at 83. (This was the topic of […]


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Product Placement: “Nancy” by Amanda Blake

posted Wednesday July 30th, 2008

I have long held the belief that when you get a cool freelance writing gig, it’s important to invest part of the proceeds. Not in stock. In merch. Something that will remind you of a positive writing experience, every time you look at it. When I sold a piece to salon.com years ago about how […]


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Baby Alive

posted Tuesday July 8th, 2008

I’ve already written once about a scary baby doll. It happened again. Several times in the last few days, I’ve walked past the living room couch and gasped — there lay (laid? pick the one you like best) a baby. I know Ray really wants a third, but I’m not sure even he’s resourceful enough to scare […]


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This American Life/Sophie's 9 Minutes of Fame

posted Monday June 30th, 2008

Saturday’s show is up now at www.thislife.org – the last segment in the “Social Engineering” show from June 27 is Sophie’s. I haven’t tried it (um, no thanks, don’t want to hear the sound of my own voice again — don’t you hate that?) but looks like you can just click and listen.


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Hairdo of the Week and — Some News

posted Friday June 27th, 2008

This week we discovered the double-messy bun(s). On the day this photo was taken, Sophie also had her shorts on backward (she knew, she insisted) and I worried that I’d really gone over the edge with the whole “I’ve gotta be me, I’ve gotta be free!” approach to childish expressions. But she actually got a […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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