The girls just rushed the kitchen, both wearing embroidered, sparkly, Mickey-eared princess hats. “Perfect! Let’s pack those!” I said to Ray, anticipating at least a $75 savings. We’ve never gone to Disneyland at such a busy time – spring break for many Arizona schools, hopefully not all the Southern California ones — but maybe the crowds […]
This morning I snuck (sneaked? snook?) out of bed, leaving both girls snoring. A real feat, the first time since Sophie’s been in her big girl bed. Every morning, it seems, she comes to us earlier. Ray calls it the “snuffle shuffle” and it’s true, she’s blessed with our noisy sinuses and who can blame […]
When I started this blog, I had the idea that I’d immediately open the Down syndrome Box and start writing about the contents. I think I’ve mentioned it once already a while ago, but briefly, the Down syndrome Box is a big Rubbermaid packed with random references to Down syndrome — mostly books, videos, DVDs and […]
Can people with Down syndrome vote? That has got to be the worst question I’ve asked since Sophie was born. The second worst: When Sophie was three months old — and about to have open heart surgery — I asked the geneticist whether people with Down syndrome ever have curly hair. (He gave me a […]
We interrupt our regularly scheduled navel-gazing to bring you this shameless plug — my dear friend Deborah Sussman Susser and I are co-teaching a one-day writing workshop at MADE in downtown Phoenix, on October 25. Check it out. Spread the word. Thanks! (This one’s for everyone, not just moms….) TRICK OR TREAT? with Amy Silverman […]
Kindergarten is a quarter gone. We had our parent/teacher conferences yesterday. It’s still well over 100 degrees — heck, it’s barely October — so it just doesn’t feel right to call the semester half in the can. But it is. Sophie is halfway done with her first half of kindergarten. And Annabelle’s half done with […]
Late last night, I met a friend to see the movie “Man On Wire”, about a French guy who walked a tight rope between the Twin Towers, shortly after they were built in the 1970s. It was an odd way to honor 9/11, maybe, but somehow fitting — and I was glad for the break from […]
OK, I wrote about her: http://www.phoenixnewtimes.com/2008-09-11/news/as-a-working-mom-with-a-child-with-down-syndrome-sarah-palin-makes-me/
Tomorrow’s a big day. Or not. Sophie’s IEP team is meeting, to review her first month of kindergarten. When we were putting the finishing touches on Sophie’s IEP (Individualized Education Program, the document that prescribes her school situation, from what therapies she gets to where she pees) I insisted we reassemble the team (everyone from principal […]
Yesterday was a big deal. Sophie’s first day of ballet. For years now, friends have kindly murmured things meant to be nice — things like, “Maybe there’s something else Sophie can do for a hobby. She doesn’t have to do everything Annabelle does.” Ray told me I was ridiculous to push it. And I have […]
