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Party Hat

They Invited Everybody…

posted Friday May 15th, 2009

…and everybody came. I don’t know if the latter will hold true, but the former certainly is. Sophie’s entire class is invited to her birthday party tomorrow. No matter what she tells you. Yesterday afternoon — after the local NPR commentary I did about her birthday was long in the can — my friend Vicki (mother of […]


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Sophie Flies through the First Quarter of Kindergarten

posted Wednesday October 1st, 2008

Kindergarten is a quarter gone. We had our parent/teacher conferences yesterday. It’s still well over 100 degrees — heck, it’s barely October — so it just doesn’t feel right to call the semester half in the can. But it is. Sophie is halfway done with her first half of kindergarten. And Annabelle’s half done with […]


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Sophie’s IEP is Mildly Retarded

posted Wednesday September 10th, 2008

Tomorrow’s a big day. Or not. Sophie’s IEP team is meeting, to review her first month of kindergarten. When we were putting the finishing touches on Sophie’s IEP (Individualized Education Program, the document that prescribes her school situation, from what therapies she gets to where she pees) I insisted we reassemble the team (everyone from principal […]


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Sarah Palin and My Playroom

posted Tuesday September 2nd, 2008

I woke up this morning and realized I’m still hysterical, so I won’t write about Sarah Palin — not yet, maybe not ever. But I’ll dance around the edges. Last night I walked past our playroom (once the formal — ha! — dining room in our ramshackled but well-loved house) and realized it looks just […]


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My Little Ball Buster

posted Wednesday July 2nd, 2008

Sophie’s in full-on ball buster mode. Has been since she woke up yesterday morning, which is unfortunate, since she had a 2-hour appointment with the psychologist yesterday to continue some testing we started last month to make sure she’s getting the right services.   I can tell you this: She didn’t score high in the […]


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This American Life/Sophie's 9 Minutes of Fame

posted Monday June 30th, 2008

Saturday’s show is up now at www.thislife.org – the last segment in the “Social Engineering” show from June 27 is Sophie’s. I haven’t tried it (um, no thanks, don’t want to hear the sound of my own voice again — don’t you hate that?) but looks like you can just click and listen.


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Hairdo of the Week and — Some News

posted Friday June 27th, 2008

This week we discovered the double-messy bun(s). On the day this photo was taken, Sophie also had her shorts on backward (she knew, she insisted) and I worried that I’d really gone over the edge with the whole “I’ve gotta be me, I’ve gotta be free!” approach to childish expressions. But she actually got a […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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