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Party Hat

Beatlemania! Hairdo(s) of the Week

posted Monday September 29th, 2008

And now for a little comic relief. (How about that economy, eh? I’m only glad I understand so little of what’s going on….) The fifth and sixth Beatles appeared in the kitchen on Saturday afternoon, courtesy of a wig originally designed to fit a Build A Bear animal and a blow up guitar from a […]


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Party Hat

Vampire Weekend Trumps The Wiggles

posted Thursday September 25th, 2008

“I like the nerdy one on the right!” I shouted to my friend Deborah, as I struggled to see past the crowd to the stage, avoiding the beer bottles rolling around our feet at the Vampire Weekend show last night at the Marquee Theater in Tempe, Arizona. “You know which one I like!” she shouted back, […]


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Holding Hands with Mannequins

posted Tuesday September 23rd, 2008

As soon as we walked into Old Navy and I saw that there were no shopping carts, I knew it would be a short trip. It had already been a long day (note to self: Sophie’s still not ready to sit through a full-length feature film in the theater) and while I constantly battle the […]


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Rites of Bubble Gum Passage

posted Monday September 22nd, 2008

Violet Beauregarde, eat your heart out. There’s a new gum champ in town. It happened in the middle of IKEA, Saturday afternoon. Annabelle blew her first bubble gum bubble. I was so proud. It hasn’t been a huge focus for her, but from time to time she’s asked me how to blow a bubble, and […]


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Party Hat

A Serenity Prayer for Parents

posted Friday September 19th, 2008

Most afternoons, the phone rings. Ms. X. swore up and down she’d keep me posted about Sophie’s trials and tribulations this year, and as far as I can tell, she’s kept the promise. The news varies. Often it involves an indiscretion or safety breach. For example, on Monday, Sophie announced to some other kids (but not […]


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Party Hat

Least Restrictive Setting, My A–

posted Wednesday September 17th, 2008

When I pulled up in front of the school yesterday morning, I noticed the “word of the week,” posted on the school sign, is INITIATIVE. I had no clue how to apply that. And by the end of the meeting with the principal, my cluelessness was evident. Also my bitchiness. “Were you raised in New […]


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Sparkle Vision at Libby Lu

posted Monday September 15th, 2008

Parenting a little girl (that’s all I know about, sorry boys) is such a balancing act, a constant system of checks and balances, and it changes constantly. TV is bad. Except for Baby Einstein. And the Wiggles and anything on public television, but definitely not Nick Jr. Well, OK, Spongebob once in a while, but […]


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Of IEP Meetings, Playground Safety and Golf Tournaments

posted Friday September 12th, 2008

Late last night, I met a friend to see the movie “Man On Wire”, about a French guy who walked a tight rope between the Twin Towers, shortly after they were built in the 1970s. It was an odd way to honor 9/11, maybe, but somehow fitting — and I was glad for the break from […]


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I don't want John McCain and Sarah Palin Raising MY Kid

posted Thursday September 11th, 2008

OK, I wrote about her: http://www.phoenixnewtimes.com/2008-09-11/news/as-a-working-mom-with-a-child-with-down-syndrome-sarah-palin-makes-me/


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Sophie’s IEP is Mildly Retarded

posted Wednesday September 10th, 2008

Tomorrow’s a big day. Or not. Sophie’s IEP team is meeting, to review her first month of kindergarten. When we were putting the finishing touches on Sophie’s IEP (Individualized Education Program, the document that prescribes her school situation, from what therapies she gets to where she pees) I insisted we reassemble the team (everyone from principal […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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