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Brownie Love

posted Sunday February 27th, 2011

It was a little thing, really. Sophie missed Brownies last Friday, and the troop leader had each kid take a scrap of paper and write what she likes about Sophie. I don’t believe the girls were supposed to sign their names. The whole lot arrived at our house today, sealed in a white envelope decorated […]


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“B”

posted Monday February 21st, 2011

Yesterday a piece I did about Sophie and her BFF (aka “B”) Sarah aired on our local NPR station. I had meant it for Valentine’s Day, but Arizona statehood day happens to fall on February 14, so the BFFs were bumped for a few days. Here they are.


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One Brave Mom

posted Thursday November 6th, 2008

I met the most remarkable woman yesterday. We’d been emailing for weeks (months?) about our daughters. The woman lives in town, friend of a friend of a friend. My daughter is 5; we found out she had Down syndrome when she was several days old. Still, I remember the time before the diagnosis felt like eternity. […]


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Four days in, and Sophie hasn’t been kicked out yet. The first week of kindergarten is full of growing pains for all the kids, and for Sophie I think it’s been especially hard because of the heat (you try going back to school — and onto the playground — when it’s 111 degrees out, and […]


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Curry and a Playdate with Megan

posted Friday June 20th, 2008

I maintain that Sophie’s the best judge of character. If she gives you the thumbs up, I’ll be your friend, too. So I wasn’t surprised when, within minutes of her arrival, Megan had already been whisked away to Annabelle’s room for a visit with Dr. Sophie, equipped with plastic toys from a half dozen doctors […]


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It’s official. I have to find Sophie some friends. At least, some play dates — specifically, the therapists tell me, play dates with girls (or very mellow boys) a little younger, 3 and a half or 4. And it’s got to be in a controlled environment: One on one. For about an hour. Annabelle can’t […]


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Friend Box

posted Sunday June 8th, 2008

Sophie has no friends. There it is, a brutal statement, but true. I was going to write about the cats, but I’m trying, with this blog, to push myself to write about hard stuff. So today, Sophie. Friendless Sophie. Not lonely Sophie, she’s by no means lonely, or unhappy. She always has someone to play […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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