Party Hat

Happy 3rd Birthday, Girl in a Party Hat

posted Sunday May 22nd, 2011

How can it be three years? I’ve never been completely clear on just who the girl in the party hat is. Sometimes it’s me, sometimes it’s Annabelle — usually it’s Sophie. Or some sort of sensibility about how life should be led. In any case, thanks for hanging with us. Hats off to you, friends.


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Party Hat

Happy Birthday Dear Sophie

posted Saturday May 21st, 2011

One of Sophie’s wishes for her 8th birthday is to stay up all night. I’ll let you know how that goes. This song by Frances England is in heavy rotation on the kids channel on satellite radio — and every time I hear it, I think of Sophie. Oh, Sophie. You do have a mind […]


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Party Hat

“I look like an ugly princess,” Sophie said.

posted Monday May 16th, 2011

It wasn’t til I had the curling iron in my hand yesterday morning that I realized I’d never tried to curl Sophie’s hair before. It’s not about Sophie — there’s not a lot of time for any sort of hair primping in our house. With only minutes to spare til we absolutely-positively-had-to-leave-the-house-or-we’d-be-inexcusably-late, I unearthed the curling iron […]


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Party Hat

Do We All Look the Same to Them?

posted Wednesday May 4th, 2011

There are two kids at Sophie’s school with Down syndrome. Sophie. And another little girl, who happens to be in Sophie’s class. Let’s call her Amelia. Sophie and Amelia look nothing alike. And yet, of course, they do. Even before Sophie chose wire-rimmed glasses that look a lot like Amelia’s, the similarities were striking, and […]


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Party Hat

The First Week of Sophie’s New IEP

posted Saturday April 16th, 2011

…ended much better than the first day of Sophie’s new IEP. After a note from the lawyer and a reminder of promises made (promises that are now legally binding) the classroom aide began Wednesday. I met her; she has a good vibe. But don’t tell Sophie — she’s not supposed to know this is “her” […]


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Party Hat

The First Day of Sophie’s New IEP

posted Monday April 11th, 2011

Email written this evening, names deleted: hey TEACHER and SPECIAL ED TEACHER — i have to admit i’m concerned and disappointed because sophie came home today without her red folder. that means she didn’t have her homework. she also did not have the weekly notes from you, SPECIAL ED TEACHER, that you sent home one […]


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Party Hat

Thank You, Friends

posted Friday April 8th, 2011

I was about to post this video last night — but it seemed too sappy, even for cornball me. Then I woke up and one of my best friends had posted the exact sentiment (to the words) on Facebook. So I figured what the heck. And it’s true. Lawyers are great and all, but there’s […]


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Party Hat

We won.

posted Wednesday April 6th, 2011

Have you ever had your own lawyer? Before we hired one to advocate at Sophie’s IEP meeting, I never had. I’ve written about lawyers, I’m related to lawyers, I contemplated becoming a lawyer. Some of my best friends are lawyers. But until today, I really had no idea what it felt like to have a […]


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Party Hat

For the Love of Jamie — and Sophie

posted Wednesday April 6th, 2011

This afternoon is the dreaded IEP meeting, the day (finally) when we will (probably) discuss what sort of help (if any) Sophie is going to be offered in the classroom. She might be offered a one-way ticket out of the mainstream classroom at our neighborhood school. It’s happened before. It’s been years, but it still feels […]


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Party Hat

Just Like in the Movies

posted Monday April 4th, 2011

Don’t see the movie Hop. That may be the single most valuable thing I’ve said in nearly three years of blogging. A terrible excuse for a movie. For a while, today, my sister tried to argue that actually Sex and the City 2 is the worst movie ever made, but I’m not sure. (Hop, by […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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