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We were on our way to the pediatrician yesterday when Sophie asked the question again. “Why do I have special needs, Mommy? Why do I have Down syndrome?” The appointment was about a rash, not even with our regular doctor, but I figured the fact that we were en route to a medical professional was […]


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Party Hat

One of These Things Is (Pretty Much) Like the Others

posted Sunday December 2nd, 2012

At the risk of tempting fate (we’ve got two more performances today) Sophie killed it yesterday at Snow Queen. The role of Wood Sprite — the littlest kids in the cast, who scamper around the autumn scene of this Phoenix Nutcracker alternative, making “sharp shapes” and pretending to cause mischief — is a good one […]


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Party Hat

Half Full… Or Half Empty?

posted Wednesday November 21st, 2012

Today is Sophie’s half birthday. She really goes for that sort of thing,  so  I got a brightly colored cake from Fry’s and cut it in half, then raided the Hanukkah stash for nine and a half candles. Sophie was thrilled when she woke up and saw the cake, and when she blew out the […]


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Party Hat

Gimmee an “S”

posted Friday November 16th, 2012

I did it. I’ve been talking it about (a lot — apologies to those who have listened to me go on) and today I finally did it. I sent in Sophie’s Special Olympics registration. For cheerleading. What follows is a piece I read last month at an event sponsored by a group called the Lit […]


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Party Hat

Today Must Be Idiot Day

posted Thursday November 8th, 2012

I snapped tonight in the check-out line at Walgreens. Back story: What the fuck is up with Walgreens? I’ve been shopping at the same store for more than 15 years, and until a few weeks ago, no one said boo to me when I came and went, and I liked that just fine. Then one […]


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Party Hat

The Love Nazi

posted Tuesday October 30th, 2012

“Do you love your sister?!” Sophie asked the other day, out of the blue. “Um, yeah, of course I love Aunt Jenny,” I replied. “Tell her!” Hmmm. That might be tough. The only time in recent memory the phrase “I love you” was used in conversation with my younger sister, it was at the end […]


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Party Hat

Sleeping Beauty

posted Wednesday October 17th, 2012

Two nights ago, Sophie slept with us. Rather, with me. She leaves Ray alone, but not me. I’m her foot rest, her arm rest, her kicking post. At one point I was sleeping on my side — my back to her — and realized she was using my hip as a pillow. Typically I’d roll […]


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Party Hat

Anyone Have a Cure for the HeyMoms?

posted Tuesday October 9th, 2012

I have a raging case of the HeyMoms. It came on two weekends ago, and no matter how much rest I get, how well I eat (I’ve even taken my Centrum for Women horse pill of a multi-vitamin religiously each morning) I can’t shake them. It started suddenly, in the car, on a Sunday afternoon. […]


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Party Hat

My Little Problem Solver

posted Friday October 5th, 2012

“Is it okay if we tell her about the underwear?” one of the teachers muttered to the other toward the tail end of Sophie’s parent/teacher conference yesterday afternoon. Underwear? Instantly, I was on high alert. (Who wouldn’t be?) It had been a pretty good conference, as far as these things go. I dread parent/teacher conferences. […]


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Party Hat

You Do the Math

posted Tuesday October 2nd, 2012

I am considering doing something very scary on Thursday afternoon. I am considering walking into Sophie’s parent/teacher conference and asking her teacher to let my kid ditch math, permanently. Ditch? Did I mean to use such a strong word? Well, yeah. Sort of. As I’ve written before, Sophie can’t do the math. She can’t do […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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