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I was nervous about the Alzheimer’s studies that ask for brain scans and drug trials, but I agreed to the heart research that only required a blood draw and the saliva samples Ray and I still have to send in. And I was super eager  for Sophie to participate in the sleep study. There’s a […]


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Sleeping Beauty

posted Wednesday October 17th, 2012

Two nights ago, Sophie slept with us. Rather, with me. She leaves Ray alone, but not me. I’m her foot rest, her arm rest, her kicking post. At one point I was sleeping on my side — my back to her — and realized she was using my hip as a pillow. Typically I’d roll […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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