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Party Hat

Cheese Touch

posted Thursday September 29th, 2011

“Here Mom, you can have the rest of this,” Sophie said, gathering her book bag and paintbrushes, then  handing me the slobbery, rubbery piece of cheese she’d nibbled all the way around on the drive to school. Watching the cheese hand-off, the sweet teacher helping her out of the car in the drop-off line laughed; so did […]


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Party Hat

I Like the Sprite in You

posted Wednesday September 28th, 2011

Mark your calendars, folks. Sophie has been cast in the Snow Queen, December 3 and 4 (matinees only) at the Herberger Theater in Phoenix. She will be appearing in the role of Sprite. This is big. And scary. Not scary for Sophie — she’s thrilled. Scary for her mother, and probably (though they aren’t saying) […]


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Party Hat

Sophie’s Rules

posted Tuesday September 27th, 2011

Sophie and I played Uno this morning. I’d never played before — mine was more of a gin rummy family, growing up — so I’m not really sure I learned the traditional rules of the game. But I have to say, she did seem to have a command of it, instructing me regarding colors, numbers […]


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t-i-o-n, shun shun shun shun!

posted Friday September 23rd, 2011

We’ve been spending a lot of time on spelling lately. Sophie’s only assigned the first seven or so words from the weekly list, but it’s still quite a challenge — for the entire family, as well as our cadre of sitters/habilitation workers. This week’s words are particularly tough: action, vision, motion, nation, section, tension and […]


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Party Hat

I called my sister from the parking lot at CVS yesterday. Sophie fought me for the iPhone, but I managed to get in a short conversation before she grabbed it away. “Where are you?” my sister asked. “The parking lot at CVS,” I said. “We were just at Walgreens, picking up Sophie’s thyroid pills, but […]


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Party Hat

Super (Sad) True (Love) Story

posted Friday September 16th, 2011

Has the book gone post-modern already? Everywhere I look, someone’s stamping an image on a page of a book they’ve pulled apart and calling it art (didn’t that used to be called blasphemy?!). The other day I saw a dress made entirely out of pages from old books. And yesterday I heard that my employer, […]


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Does Annabelle know what society has in store for Sophie?

posted Thursday September 15th, 2011

I looked down the grocery checkout counter yesterday afternoon, right into Sophie’s face. It’s not so jarring anymore. Megan has worked at our Safeway for years, quietly bagging groceries and avoiding eye contact, clearly well-versed in the concept of Stranger Danger, even if the stranger is a frazzled-looking mom type complimenting her cute headband. Of […]


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A Story that Belongs to Us

posted Sunday September 11th, 2011

Ten years ago this morning, I was sitting in front of a tiny color TV set we just gave away last year, watching a rerun of E.R. and trying to get Annabelle to eat. At 8 weeks, she was more of a puker than an eater. The scene cut abruptly from medical drama to a […]


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Face Value

posted Friday September 9th, 2011

“Sophie must get talked about more than any other kid at that school,” Ray said, when I recounted the details of yesterday’s meeting this morning as we both raced around the kitchen, getting ready for the day. Yeah, I thought to myself. And I bet I get talked about more than any other parent. That’s […]


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Party Hat

Smile!

posted Wednesday September 7th, 2011

Last night Ray and Annabelle hit the rock gym, while Sophie and I hit the couch. Sophie had the sniffles, and in a rare moment of family consensus, it was determined that a mellow evening and early bedtime were in order. Sophie and I texted friends, watched some Nick Jr., and took pictures of ourselves […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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