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Tooth Scary

posted Tuesday August 31st, 2010

Just yesterday I was pondering cognitive tests. Last night, I got all the proof I need that Sophie’s one smart cookie. She’s had several wiggly teeth for weeks now, but there had been little action til Sunday night, when I accidentally (I swear! I felt terrible!) wiggled one a little too hard and moved it into […]


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That’s what they are talking about at the University of Arizona in Tucson — and they are looking for volunteers 7 and older to test their tests. I’m not typically one to offer my kids up as guinea pigs, but I’ve already emailed the researchers. Given that Sophie’s IQ has been estimated to be in […]


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Christmas in August

posted Friday August 27th, 2010

On August 8, I emailed my friend Robrt. “Let the record reflect…that I started my Hanukkah shopping today,” I wrote. He replied, “You rule.” “This year is going to be different!” I answered, sensing sarcasm, which he confirmed with, “I suspect you mean that.” I’m sure Robrt’s right, and that this year I’ll drag myself through […]


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Can You Tell Me How to Get to Sesame Street?

posted Wednesday August 25th, 2010


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Tomorrow there’s a meeting of Sophie’s “team” — the therapists, teachers, even the principal, everyone who works to make it possible for her to be mainstreamed at a public school. It’s a good thing, this meeting. In fact, I demanded that it be written into her IEP (the document dictating her services) since typically the […]


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The Girl in the Purple Pants, Part Two

posted Monday August 23rd, 2010

Now presenting: the girl in the purple pants. Yesterday I finally sorted (and tossed much of) all the paper from first and third grade, which is good, since we are officially into the third week of second and fourth grade. I made it to the bottom of Annabelle’s third grade backpack (accidentally ran some ancient […]


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“Be Like You”

posted Sunday August 22nd, 2010

I’m bummed the birthdays — and the birthday mixes — have come and gone, because here’s a song I just love. Not new, but new to me. It’s by the Asylum Street Spankers. (An Austin, Texas band, super-cool, they advertise themselves as “God’s favorite band.” Ha. They also have an adult tune called “The Scrotum […]


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Sophie Shots

posted Friday August 20th, 2010

A while back I promised to share some of Sophie’s images, taken with my (“borrowed”) iPhone. Here are a few taken around the play room and living room on a hot Saturday afternoon. More to come, from other photo shoots.


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There Will Be Blood (Tests)

posted Tuesday August 17th, 2010

They took Sophie’s blood last Friday. It made quite an impression. After a false start with a less-qualified tech (and some screaming), a very kind woman named Alice coaxed Sophie into the chair and before either of us knew it, had the blood flowing. That’s a gift. So’s the connection this lady made with my little girl. […]


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Stop This Merry Go Round!

posted Tuesday August 17th, 2010

The other night, we hit the mall for Toy Story 3 and some food court action. The movie was great, the food terrible, nothing unexpected. And I wasn’t surprised when Sophie begged to ride the carousel. Typically, I’m the Carousel Girl — happy to take Sophie on it again and and again while Ray and […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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