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Leggo My Legoland

posted Friday July 11th, 2008

Sophie’s favorite part of Legoland was the Sophie-sized-sink (DIY is a big deal in her world) in the bathroom: My favorite part of Legoland was the sign for the bathroom: Those are two of the few things at Legoland that are not actually assembled from Legos. Actually, there’s more — I was suprised, it’s a […]


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Party Hat

Christmas in July

posted Thursday July 10th, 2008

You were wondering what Santa Claus does in the off months? I now know: There he was, yesterday, at Sky Harbor International Airport in Phoenix, in shorts and a baseball shirt printed with NORTH POLE and CLAUS on the back. Red shorts, red shoes, red socks. He looked almost as ridiculous as his wife, who […]


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Girl in a Winter Hat

posted Tuesday July 8th, 2008

The summer between first and second grade, I had the most beautiful red and white checked outfit my Great Aunt Adele gave me. I insisted on wearing it quite often. That would have been fine, if the outfit had not been long sleeved and wool, and had I not been living in Phoenix, home of […]


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Elmo’s Teary World

posted Sunday July 6th, 2008

By the end of our Fourth of July celebration last night, Sophie’s face was streaked with red tears, the Elmos face painted on each of her cheeks running down her face. She couldn’t have been happier. “Oh, what’s wrong with your little girl?” people ask in the mall or at the grocery store. “Why is […]


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Party Hat

It’s only been a little over a month, but already, Sophie’s pre-school experience is fading away. I saw it yesterday in our breakfast with the still-fabulous, still-celebrated Ms. Janice — without her classroom as an accessory, she’s now become simply a very good friend, rather than teacher. I had the role of the enforcer (not […]


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My Little Ball Buster

posted Wednesday July 2nd, 2008

Sophie’s in full-on ball buster mode. Has been since she woke up yesterday morning, which is unfortunate, since she had a 2-hour appointment with the psychologist yesterday to continue some testing we started last month to make sure she’s getting the right services.   I can tell you this: She didn’t score high in the […]


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This American Life/Sophie's 9 Minutes of Fame

posted Monday June 30th, 2008

Saturday’s show is up now at www.thislife.org – the last segment in the “Social Engineering” show from June 27 is Sophie’s. I haven’t tried it (um, no thanks, don’t want to hear the sound of my own voice again — don’t you hate that?) but looks like you can just click and listen.


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Girl in A Pair of Pink Tevas

posted Monday June 30th, 2008

I was bad today. No, I didn’t exceed my Weight Watchers points. I went to Last Chance. As we like to say in these parts, you only get one Last Chance — and it’s in Phoenix. For reasons I can’t remember, but at one point long ago did actually report, Nordstrom put its clearance center […]


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Drink Up

posted Sunday June 29th, 2008

Tonight we saw WALL-E — a rare, special occasion, for the four of us to make it to the big screen together. Ray had a Coke, I had a Diet Coke, Annabelle had an Icee and Sophie had apple juice. Halfway through the movie, Annabelle stage-whispered, “I dropped my straw!” I took mine out of […]


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Party Hat

Hairdo of the Week and — Some News

posted Friday June 27th, 2008

This week we discovered the double-messy bun(s). On the day this photo was taken, Sophie also had her shorts on backward (she knew, she insisted) and I worried that I’d really gone over the edge with the whole “I’ve gotta be me, I’ve gotta be free!” approach to childish expressions. But she actually got a […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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