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Are People with Down syndrome Mentally Retarded?

posted Saturday August 2nd, 2008

Before you start pelting rotten eggs at your computer screen, let me explain. First, “mental retardation” is a medical term. The IQ cut off is 69. Seventy, and you’re not retarded. Second, I have spent much of the year considering this topic, particularly since Sophie’s IQ clocked in at 83. (This was the topic of […]


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(NOTE: OK, I’M TAKING MY FRIEND PAM’S ADVICE AND PUTTING “DOWN SYNDROME” IN MY HEADLINES, ALTHOUGH I INSIST IT MAKES THEM CLUNKY AND RIDICULOUS. IT’S AN EXPERIMENT.) Yesterday was Meet the Teacher Day. We’d already met the teacher(s), so we just paid a visit. I’d like to report that Sophie was an angel — that […]


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2nd Grade, Here She Comes

posted Monday July 28th, 2008

At 7, Annabelle’s way better with a video camera (actually, I think it’s an attachment on our old digital camera, which Ray gave her) than I am. While Sophie and I were at Trader Joe’s yesterday, Annabelle made a movie. She had a little help from Ray, but he swears she filmed the whole thing […]


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Little Miss Birthday

posted Sunday July 27th, 2008

Today Annabelle and I went to Kate Belly Button’s birthday party. (You know, it could be that I’ve already introduced Kate Belly Button, but the truth is that it’s close to midnight and I’ve promised myself I’ll deal with at least one overflowing basket of laundry before bed, so I figure I either have time […]


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And the winner is…..

posted Saturday July 26th, 2008

Sophie! Becuase contrary to my deep dark fears, she DID get the amazing Ms. X, star of stage and screen and Annabelle’s own fabulous kindergarten year. Sophie is doing a poo-poo dance by my chair. More on Ms. X later.


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The Envelope, Please

posted Saturday July 26th, 2008

I got home late tonight. Sophie was already in bed. It was sitting on the mail table, still sealed, in an envelope decorated with school stuff — apples and mortarboards — addressed to Sophie. The Teacher Letter. I considered ripping it open; she wouldn’t really know the difference. But I couldn’t do that. So there […]


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Sophie’s Got Morning Monkeys on Her Back

posted Friday July 25th, 2008

Not long ago, Ray commented that we really should hang the Morning Monkey quilt — the one a mom in Sophie’s pre-school class made when she had heart surgery last fall — on the wall. “It’s fading,” he said. I’d just blogged the same thing. It’s true. Everytime we wash the quilt, the monkeys are […]


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The Shoemaker

posted Thursday July 24th, 2008

It started last week. Appropos of nothing (nothing I knew of, anyway) Annabelle came home from camp with a Magic Markered diagram, depicting instructions for making shoes. The next morning, I couldn’t budge her away from the dining room table, she was so engrossed in typing paper, scissors and tape. By the time we finally […]


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Cooking with Sophie

posted Monday July 21st, 2008

I’ll never forget that right after Sophie was born, my sister said to my mother, “Well, Amy will always have someone to get a pedicure with.” I love that line. And while it’s not always true (Sophie’s certainly not up for EVERYTHING), she’s pretty game. Yesterday afternoon I asked Annabelle if she’d like to bake […]


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Hairdo of the Week — er, Moment

posted Thursday July 17th, 2008

The double messy bun has turned out to be such a big hit that Sophie requests the ‘do regularly. This morning Annabelle (who normally puts her own hair back in a low ponytail, unless it’s post-bath, in which case she’ll grudgingly let me comb her hair out and braid it) requested the same. I was […]


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My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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