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Party Hat

#goodnightsophie

posted Friday May 2nd, 2014

This is a first. I’m in an art show! A few weeks ago, I took a photo of Sophie asleep on the couch. These days she tends to stick her hand in my face when I try to take her picture, but she couldn’t stop me then. And I loved how she looked. From time […]


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Party Hat

Losers

posted Wednesday April 2nd, 2014

Saturday was the state Special Olympics cheerleading competition. Sophie’s team bombed. They finished third out of three, winning bronze medals. I found Sophie’s crumbled on the not very clean porch windowsill the next day. No one had even bothered to bring it into the house. A rather sad end to the season, in contrast with last […]


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Party Hat

Her Last Rodeo

posted Friday March 28th, 2014

The phone just rang, and I held my breath. Ms. X is the only person in my phone with the “xylophone” ring tone, and even though Sophie’s been out of kindergarten for five years, and Ms. X has become a dear friend — meaning the call could have as easily been about margaritas as a […]


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Party Hat

Guest Post from Sophie: “Birthday”

posted Thursday March 27th, 2014

Hi my name is Sophie and today I will talk to you guys about my birthday. Can you give me ideas for songs for my 11th birthday mix? And hope you love my post. And also me and my mom got some song ideas together, like Party in the USA and we are thinking about […]


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Party Hat

“Fabulous Sophie” Writes a Guest Post

posted Sunday March 9th, 2014

Editor’s Note: For a long time now, Sophie has wanted to start her own blog. She and I discussed it and decided that’s a lot of work, so instead she’ll do occasional posts on Girl in a Party Hat. Here’s her first. She wrote it herself start to finish — though I did offer my […]


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Party Hat

I’d known for weeks that I had to attend a meeting to discuss Sophie’s future — but I couldn’t bring myself to open the envelope from the psychologist till I was in the car, headed for the school. I knew what was inside: All of the testing that has been done on Sophie over the […]


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Party Hat

The Family Bed

posted Thursday January 30th, 2014

It begins before I’ve opened my eyes in the morning. “Mommy. Mommy. MOMMY,” Sophie stagewhispers from a few inches away, as she pulls my blanket over herself. (Unintelligible mumbling from me, something worse from Ray’s side of the bed.) “Mommy, can I sleep in your bed tonight?” As the Meanest Mom in the World, I […]


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Party Hat

Reports of the death of print journalism have been greatly exaggerated, and if you don’t believe me, consider the intense debate in the past few days over two magazine covers. Print journalism isn’t dead, and neither is its struggle to figure out how to depict women. Consider Lena Dunham on the cover of Vogue and […]


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Party Hat

2013 Gun Show Comes to an End. Good Riddance.

posted Tuesday December 31st, 2013

One year not long ago, I resolved that every day I’d write down or photograph a reason to love Phoenix. Another, to quit complaining about the heat. The first worked better than the second, though after each I resolved to quit resolving. Then I passed a display in my favorite nail salon and made one […]


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Party Hat

Still Life with Santa Claus and Sophie

posted Monday December 30th, 2013

I was collapsed on the couch yesterday, surveying the holiday damage — the game parts on the floor, the containers of sparkly nail polish spilling out of the bin, the candy wrappers and piles of pine needles — when I noticed one element still standing proud, tall and unmarred, a contrast to the teetering candles […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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