Party Hat

Thank You Kindly

posted Thursday June 17th, 2010

I’m a big believer in thank you notes. Not voicemails or emails or texts or Facebook wall posts or tweets — the kind of thank you note that actually arrives in the mailbox with a stamp on it and handwriting inside. That’s not to say that I always manage to get one sent, or that […]


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Waiting for Tallulah Fairbanks

posted Wednesday June 16th, 2010

Yesterday I stuck my hand in Sophie’s mouth, and guess what? Four loose teeth. Including  the one in front of the shark tooth. Phew. Now if those little suckers can just hang on til the stationery arrives for Tallulah Fairbanks, Sophie’s tooth fairy. Sophie informs me that she actually has seven loose teeth (her favorite […]


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The Blue-Toed Nephew and Other Signs of Cousin Love

posted Thursday June 3rd, 2010

We are going through some serious cousin withdrawal in our house. Our little fam flew to Denver this past weekend to spend a few days with my sister and her crew. Above is a rare species, the youngest cousin, Sam: The only blonde my sister’s had (her other two have their father’s dark hair) and the […]


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Sophie’s Salad Years

posted Monday May 24th, 2010

The party’s over. It was a good one. If I was one to nitpick, I’d say that there was not enough candy in the pinata, the music guys flopped (7 and 9 year olds are too old for “Five Little Monkeys”), the coffee was bad, and what was I thinking, skipping the adult beverages?! Minutes before guests […]


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What 7 Looks Like

posted Friday May 21st, 2010

Check out my grown up girl! “Let me take a picture to show everyone what a 7 year old looks like,” I said this morning, as we scurried to the car. I don’t recall ever seeing this expression — not for a photo, anyway. What happened to the 6 year old with the ear-to-ear grin? […]


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Vision Therapy

posted Thursday May 20th, 2010

Vision therapy. Now, that’s something I think all new parents — particularly parents of kids with Down syndrome — could use. A little coaching through the process of envisioning the future, jumping ahead, fretting over something that might (or might not) happen years or decades from now. But that’s not what I’m talking about here. […]


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The Wave

posted Tuesday May 18th, 2010

The annual ballet recital was Sunday. The girls were cool as cucumbers — see  the photos above and below (taken just moments before the performance) for proof. But I was a wreck. I knew it didn’t matter a bit, what happened on stage. This particular studio rents the fanciest space in town for its recital, […]


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First Blush

posted Monday April 26th, 2010

Yesterday at Target (before things when south, before the running and the chasing and the time out) Sophie and I had a snack. She was eating her pretzel and lemonade and I was questioning the wisdom of ordering a premade sandwich when suddenly, she got up from the table. I wasn’t alarmed, she didn’t go […]


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Behavior Modification — But for Whom?

posted Monday April 26th, 2010

I have been working on my follow-thru. If I threaten a time out, I stick to it. If I count to three — and actually get to three — there are consequences. And if I promise to withhold a treat or toy or some other coveted something, I keep my promise. No, I’m not perfect […]


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The Melt-in-Your-Hand IEP

posted Friday April 16th, 2010

Sophie’s IEP meeting was last week, and we’re still in the throes of finalizing/reviewing/sign-seal-and-delivering, but things seem to be falling into place. It’s such a detailed process, designed to address every possible angle of your kid and her needs, but really what I find is that it lulls you (or me, anyway) into a false […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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