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Tomorrow there’s a meeting of Sophie’s “team” — the therapists, teachers, even the principal, everyone who works to make it possible for her to be mainstreamed at a public school. It’s a good thing, this meeting. In fact, I demanded that it be written into her IEP (the document dictating her services) since typically the […]


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Sophie Shots

posted Friday August 20th, 2010

A while back I promised to share some of Sophie’s images, taken with my (“borrowed”) iPhone. Here are a few taken around the play room and living room on a hot Saturday afternoon. More to come, from other photo shoots.


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There Will Be Blood (Tests)

posted Tuesday August 17th, 2010

They took Sophie’s blood last Friday. It made quite an impression. After a false start with a less-qualified tech (and some screaming), a very kind woman named Alice coaxed Sophie into the chair and before either of us knew it, had the blood flowing. That’s a gift. So’s the connection this lady made with my little girl. […]


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Stop This Merry Go Round!

posted Tuesday August 17th, 2010

The other night, we hit the mall for Toy Story 3 and some food court action. The movie was great, the food terrible, nothing unexpected. And I wasn’t surprised when Sophie begged to ride the carousel. Typically, I’m the Carousel Girl — happy to take Sophie on it again and and again while Ray and […]


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BFFs

posted Tuesday July 27th, 2010

This is a portrait of Sophie and her BFF Sarah, taken by one of them. I’m not sure which one. In the next week or so I’m going to be sharing photos taken with my iPhone but not taken by me. Mostly by Sophie. She’s got an eye on her, I’ve got to say. Ray […]


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Should We Be Writing About Our Kids? Part Two

posted Thursday July 22nd, 2010

My kingdom (why doesn’t anyone ever say queendom?) for five minutes alone in the bathroom. Not to be. Sophie barged in this morning and started asking questions. My favorite: “What are those dots on your face?” Not interested in explaining the fundamentals of foundation (which I later managed to squirt all over the bathroom, really […]


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A Snowman in July, Revisited

posted Sunday July 4th, 2010

Man, it’s been hot. I mean scorching. 112 in the shade. On the car thermometer, 118. Reminds me of the day last summer I saw the snowman. That was quite a day — the hottest day of the year, the day Sophie was officially diagnosed as mentally retarded. I thought I’d share the post and […]


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Sophieisms, Part One

posted Thursday July 1st, 2010

You go years thinking she’ll never talk, then suddenly you can’t shut her up. Good. My friends Robrt and Todd (you know, the shopping enablers) have been saying “BUY IT” ever since Sophie coined the term — complete with a Lauren Bacall-esque voice — quite some time ago. After she told me tonight, “Mommy, my […]


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Overheard from the Back Seat

posted Wednesday June 23rd, 2010

Annabelle: “Sophie, are you proud of having Down syndrome, or embarrassed?” Sophie: “Happy!”


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Candy From Strangers

posted Monday June 21st, 2010

Last night we were out for dinner for Father’s Day. So was the rest of the city. Get this: I had a conversation with a complete stranger. This happens less than you might think, particularly in Phoenix, a place where we all tend to travel in our own private little bubbles — a byproduct of […]


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My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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