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Party Hat

I had one overwhelming thought at the end of The Muppets. Why didn’t I learn my lesson with the remake of Fame? I so wish I’d stayed home instead of dragging my family to the mall on the day of the film’s release. Ugh. She already ruined Julie and Julia — now I officially hate […]


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Party Hat

Cake Walk of Shame

posted Friday November 4th, 2011

“I’m praying for her,” the Cake Walk Lady stage-whispered as she dropped Sophie’s ticket in a big barrel and motioned for her to join the circle. Twenty, 30, 40 times? I lost count. We must have been at the Cake Walk a full hour by then, almost half the time allotted for the school’s fall […]


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Party Hat

There’s a video news clip making the rounds on Facebook this week — I’m not sure why it’s popped up now, but it’s your typical feel-good story that everyone always seems eager to share so I guess it’s not too surprising. The lull between Halloween and Thanksgiving, maybe. Some group called Success Nation is passing it […]


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Party Hat

I Like the Sprite in You

posted Wednesday September 28th, 2011

Mark your calendars, folks. Sophie has been cast in the Snow Queen, December 3 and 4 (matinees only) at the Herberger Theater in Phoenix. She will be appearing in the role of Sprite. This is big. And scary. Not scary for Sophie — she’s thrilled. Scary for her mother, and probably (though they aren’t saying) […]


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Party Hat

t-i-o-n, shun shun shun shun!

posted Friday September 23rd, 2011

We’ve been spending a lot of time on spelling lately. Sophie’s only assigned the first seven or so words from the weekly list, but it’s still quite a challenge — for the entire family, as well as our cadre of sitters/habilitation workers. This week’s words are particularly tough: action, vision, motion, nation, section, tension and […]


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Party Hat

I called my sister from the parking lot at CVS yesterday. Sophie fought me for the iPhone, but I managed to get in a short conversation before she grabbed it away. “Where are you?” my sister asked. “The parking lot at CVS,” I said. “We were just at Walgreens, picking up Sophie’s thyroid pills, but […]


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Party Hat

Super (Sad) True (Love) Story

posted Friday September 16th, 2011

Has the book gone post-modern already? Everywhere I look, someone’s stamping an image on a page of a book they’ve pulled apart and calling it art (didn’t that used to be called blasphemy?!). The other day I saw a dress made entirely out of pages from old books. And yesterday I heard that my employer, […]


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Party Hat

Does Annabelle know what society has in store for Sophie?

posted Thursday September 15th, 2011

I looked down the grocery checkout counter yesterday afternoon, right into Sophie’s face. It’s not so jarring anymore. Megan has worked at our Safeway for years, quietly bagging groceries and avoiding eye contact, clearly well-versed in the concept of Stranger Danger, even if the stranger is a frazzled-looking mom type complimenting her cute headband. Of […]


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A Story that Belongs to Us

posted Sunday September 11th, 2011

Ten years ago this morning, I was sitting in front of a tiny color TV set we just gave away last year, watching a rerun of E.R. and trying to get Annabelle to eat. At 8 weeks, she was more of a puker than an eater. The scene cut abruptly from medical drama to a […]


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Party Hat

Happy September

posted Thursday September 1st, 2011

I’m not one, typically, to wish you a happy (insert day of the week). But for September — for an entire month — I’ll make an exception. If you live where I live, August is the cruelest month, a time of desperation. Every year, it feels like August will never end. And while I know […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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