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Camelot

posted Wednesday January 15th, 2014

I met with the principal at Sophie’s school yesterday. It had nothing to do with what’s going on at school — not this school. It was time, finally, to pull the trigger. To figure out the next step toward junior high. I won’t bury the lede. At this point, if I had to make a […]


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This morning I spoke on the phone with yet another special education professional about another school we might send Sophie to. This woman gave her school the pretty hard sell — unusual since so many others have dissuaded me from considering theirs, including a special teacher at the school Annabelle attends. But I wasn’t so […]


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“Of course, Sophie is Greek for wisdom….”

posted Tuesday July 23rd, 2013

I don’t know why I did it. Usually I fall all over myself in my rush to announce that Sophie has Down syndrome. But even though I’ve yet to really toss myself in the deep end when it comes to finding her a junior high option, I’m already feeling myself drowning. Yesterday I found myself […]


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“Next Year, You’ll Rule the School!”

posted Friday May 31st, 2013

Sophie’s not supposed to have a very good memory. There’s the whole Down syndrome thing, of course, and on top of that even though the sensors fell off and we never got good test results, she’s got to have pretty bad sleep apnea. Last night I found her asleep on the couch, sitting straight up, […]


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Wigging Out

posted Tuesday October 11th, 2011

If Annabelle remembers anything about the fifth grade, I hope it’s the bright red wig I bought her one Friday after school. I wouldn’t typically indulge one of my kids like that (have you bought a wig lately?! expensive!) but she’d been asking for weeks — said she needed it desperately to complete her Halloween […]


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I Like the Sprite in You

posted Wednesday September 28th, 2011

Mark your calendars, folks. Sophie has been cast in the Snow Queen, December 3 and 4 (matinees only) at the Herberger Theater in Phoenix. She will be appearing in the role of Sprite. This is big. And scary. Not scary for Sophie — she’s thrilled. Scary for her mother, and probably (though they aren’t saying) […]


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Taking Responsibility.

posted Wednesday August 24th, 2011

“Is this one-inch or half-inch?” Annabelle just asked me, holding up a black binder. “One-inch,” I said, not looking up. Until last week, I didn’t even know that binders had sizes. Now, thanks to Annabelle’s new school, I am intimately aware. She hid behind the binder and groaned. “Really?” I asked in my most cheerful […]


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Annabelle Swift, Fifth Grader

posted Tuesday August 23rd, 2011

“5:30 is the new 7:30!” Ray announced cheerfully yesterday morning, as the entire family skittered through the house, getting ready for Annabelle’s first day of school. Ouch. The old school started at 8:50 (9 this year!) and we live, oh, about 30 seconds away. The new school starts at 7:45 — across town. Yesterday morning […]


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Tales of a Fourth Grade Something

posted Saturday May 28th, 2011

Annabelle slept til 8 yesterday morning. No, it wasn’t the first day of summer. It was the last day of school. Who’s ever heard of an elementary school that starts at the civilized hour of 8:50 a.m.? Me. And since we live just a few blocks from school, we slipped out of the house at […]


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Castles in the Sky

posted Thursday April 28th, 2011

Annabelle popped a tooth tonight. Her tenth. Per tradition, she wrote her tooth fairy a note, folding it carefully and putting it (and some shredded cheese) next to the pillow holding her tooth. I love reading those notes. Tonight’s was short, but I think it will always be my favorite. “Do you like my cursive?” […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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