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Wax Museum

posted Tuesday April 29th, 2014

The other day Sophie, Ray and I went for a walk. Sophie walked between us, and one point reached out and grabbed each of our hands. “Will we go for walks like this our whole lives?” I asked, saying it as much to myself as to Sophie. “No,” she said matter-of-factly. “I’ll go for walks […]


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Guest Post from Sophie: “Sleepovers”

posted Wednesday April 23rd, 2014

one day me and my grandma are going to the mall and we got lunch and then we went shopping for cloths  and then we  went to  h and m and  then we bumped into  Sarah and her mom i said that can i sleep over  together and we went out for dinner we got […]


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Mornings with Sophie

posted Tuesday April 22nd, 2014

This morning Sophie stumbled into the kitchen and announced — half awake but smiling — that there are only four more Mondays left in the school year. I looked at the clock and I wanted to cry. Not only because of my worries about junior high, and my mushy feelings about her current school — […]


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Make Up

posted Monday April 14th, 2014

Sophie spent the weekend disappointed. It began Friday afternoon, when I wouldn’t let her participate in Annabelle’s ballet class. I tried to make it up to her — literally. In the cosmetics section of Walgreens. “I need dark eyeliner,” she told a helpful clerk. “I’m doing a dramatic dance.” The clerk looked at me. I […]


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After School Hugs

posted Friday April 11th, 2014

This morning Sophie burst through the kitchen door — fresh from a shower, wrapped in a towel — and announced, “I look like a full-grown woman!” I smiled. Adorable? Yes. Full-grown woman? Hardly. True, she didn’t have the towel draped over her shoulders like a little kid, but at 43 inches and 54 pounds, dripping […]


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Losers

posted Wednesday April 2nd, 2014

Saturday was the state Special Olympics cheerleading competition. Sophie’s team bombed. They finished third out of three, winning bronze medals. I found Sophie’s crumbled on the not very clean porch windowsill the next day. No one had even bothered to bring it into the house. A rather sad end to the season, in contrast with last […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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