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Why Can’t I Be You?

posted Monday August 29th, 2016

Years ago, as elementary school came to a close, Ray warned that Sophie’s Salad Days were ending, too. I completely agreed. Gone, soon, would be carefree days of feeling accepted, of being fully included. That was more than two years ago, and I’m still waiting — against all odds, I’m pretty sure — for the […]


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Tangled

posted Wednesday February 3rd, 2016

Yesterday I ran into the vice principal at Sophie’s middle school. I adore this woman, who ushered my tiny girl into cheerleading and is one of many who look out for her every day. After we had such an incredible experience in elementary school, I never thought I’d get comfortable with these people at this […]


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All The World’s A Stage — Maybe

posted Thursday December 11th, 2014

I have a lot of uncertainty when it comes to Sophie — her future, her academic abilities, whether or not she brushed her teeth before bed last night. But one thing I know for sure: The stage beckons. This is a kid with a flair for the dramatic. She will take any opportunity to perform, […]


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Small Kindnesses

posted Wednesday October 1st, 2014

The other day I opened Sophie’s school backpack and noticed she had a new set of folders — shiny, carefully labeled with each of her classes and in her favorite themes, kittens and nail polish. Her aide did it. She didn’t ask, or make a big deal out of it. She just did it, knowing […]


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Uniform Behavior: Down syndrome and Junior High

posted Tuesday August 12th, 2014

Another big change in junior high: a strict dress code. The first couple days of school, Sophie was excited to wear her navy polo dress or a shirt and a khaki skort. By day three, she was rebelling — wanting to wear forbidden leggings, refusing to tuck in her shirt — and by the first […]


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After School Hugs

posted Friday April 11th, 2014

This morning Sophie burst through the kitchen door — fresh from a shower, wrapped in a towel — and announced, “I look like a full-grown woman!” I smiled. Adorable? Yes. Full-grown woman? Hardly. True, she didn’t have the towel draped over her shoulders like a little kid, but at 43 inches and 54 pounds, dripping […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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