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Party Hat

Scrolling through Facebook the other day, a status update caught my eye. “crowd question: so what’s a disability snob?” I can’t call the poster a friend, though we are, obviously, Facebook friends, and I’ll hasten to add that she seems like a cool person — one of the moms I’ve “met” virtually since joining the […]


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Party Hat

It’s Raining Cats and Dogs — and Control Freaks

posted Wednesday February 20th, 2013

She might have been on time, if not for the umbrella. Rather, the lack thereof. Here’s the thing. We live in Phoenix. We have no need for umbrellas. Even on the rare rainy day, it’s not like you’d actually walk down the street to get to your destination — instead, we race a few feet […]


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Party Hat

Whole Lotta Love

posted Friday February 15th, 2013

The other day, Sophie walked into the kitchen, threw her short arms around the knees of the man installing the cabinets in our kitchen remodel, and announced with Lena-Dunham-intensity, “Mark, I love you. You’re my valentine.” Let’s just say the two of them had not spent much time together before this moment. Mark smiled and […]


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Party Hat

No Restrictions

posted Sunday February 3rd, 2013

Last Tuesday morning, Sophie followed me into the bathroom, took my hand, and placed it over her One Direction pajamas, over the big bump on her chest where the bones mended — first, when she was 4 months old, then 4 years. “How does your heart feel?” I asked, smiling. “Good!” she said. “I don’t […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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