Whole Lotta Love

posted Friday February 15th, 2013

The other day, Sophie walked into the kitchen, threw her short arms around the knees of the man installing the cabinets in our kitchen remodel, and announced with Lena-Dunham-intensity, “Mark, I love you. You’re my valentine.”

Let’s just say the two of them had not spent much time together before this moment.

Mark smiled and looked a little freaked out and I smiled and looked a little freaked out — and hustled Sophie out the door to school.

To be fair to Sophie, Mark did seem like a nice person, and it’s true that she doesn’t do this kind of thing as much as she used to. When Sophie was 4 or so, I remember expressing grave concern to one of her therapists about how she would often run up to random strangers in the mall and hug them. The woman looked confused for a minute, then she got it.

“You think she’s going to do that her whole life, don’t you?” the therapist asked, smiling kindly — and condescendingly.

Well, duh. And although it’s gotten better in the last six years, I’m still not unconvinced. Yesterday was Valentine’s Day, and Sophie was in her prime — writing love notes, giving gifts, offering hugs and kisses. Pretty much acting like she acts every day, only on Valentine’s Day it’s cool to do that.

I know what you’re thinking — you’re thinking that really, it should be cool to do that every day, and that I’m uptight. I agree. But I’m also concerned that Sophie’s emotional thermostat is set too high — that she’s not able to appropriately manage and express her feelings. And that while that tends to be adorable on an almost 10 year old, it won’t be so great when she’s 20.

But the thing that worries me even more is that she’ll stop being that way.

I think about Megan, the bagger at our Safeway, who’s clearly been trained to never make eye contact beyond the “Thank you!” at the end of each shopper’s experience. Or any of the women with Down syndrome we see each Saturday at Special Olympics cheerleading practice. These women don’t offer hugs and kisses; they don’t even say hello. They shuffle past in their own little bubbles and I don’t know why. Maybe because when they were 10, their moms worried that some day they’d be grown women hugging strangers at the mall — so they began the task of wringing that out of them. (I can’t blame them. I know the kind of bullseye Sophie has on her. This is about more than niceties — it’s about safety.)

Maybe it’s just that it’s the wrong setting — and outside of Safeway, Megan makes Wii Miis for all her friends and kisses them on the tops of their heads. Maybe when they’re not at Special Olympics, Sophie’s fellow cheerleaders tell their moms they love them 10 times a day — and the truth is that the moms secretly love it.

I don’t know. And I’m afraid to ask.

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Tags: Filed under: Down syndrome by Amysilverman

2 Responses to “Whole Lotta Love”

  1. Touched me Amy, that dual anxiety is so present. Kayli at 13 is not dulled at all from that state of random intuitive affection- has matured to more reserve towards strangers but still expresses her love for us and others she is close to ex if your face goes within 3 inches away from her face for any reason she kisses it instinctively:). She’s still a love bug. But I too worry about that light going out. I love it so.

  2. What beautiful and realistic writing. Your emotions are
    Tangible. I found you just googling around because I make party puppet
    Hats! But I stayed for the beautiful and bio!
    If want hats for the (I know they are getting older)
    But if you let me! I do custom work and I would love to
    Provide one of my FurGiggles or a custom piece for them! I shared
    Your last story on twitter!
    Bridget

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