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A cure for Down syndrome?

posted Monday January 11th, 2010

Earlier today, Cheri — a wise mom and beautiful blogger — forwarded the link to Lisa Belkin’s post on the New York Times Web site, about the possibility of a cure for Down syndrome. Whoa. On a day I ate popcorn at my desk for lunch, I’m way too busy to thoroughly digest that kind of […]


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Thermostat Issues

posted Monday January 11th, 2010

I’ve come to the conclusion, after this weekend, that it’s as though Sophie’s emotional thermostat is broken. Or at least a bit off. Maybe it’s her social thermostat, rather than emotional. And maybe I shouldn’t say “broken.” I know I shouldn’t say broken. I’m struggling with how to explain it. Saturday afternoon, I took the […]


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A Picture’s Worth

posted Friday January 8th, 2010

My dear friend Mrs. M snapped this photo of Sophie last month, and I haven’t been able to stop looking at it — and not just because it’s of my kid. I tried to describe why, but my words aren’t adequate, so I’ll just leave you with the picture.


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******ME******

posted Wednesday January 6th, 2010

Lately, I’ve noticed that I haven’t been writing so much about Sophie and Down syndrome, per se. Maybe it was the distractions of the holiday season, but I think it’s more than that. Funny, when she was born, the doctors and other experts warned us that as she grew, we’d see her differences more. Instead, more and […]


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My Favorite Christmas Present

posted Tuesday January 5th, 2010

Ray made me promise I wouldn’t blog about it — and I held out for a while — but I love my homemade Christmas gift from him so much, I can’t resist. In case you can’t tell, the photos are of the girls on Christmases past, and the whole thing is covered in fake snow. There’s […]


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Ode to Joy

posted Monday January 4th, 2010

I can’t shake the bit of melancholy that’s been hanging around the edges of my world, this whole holiday season. Usually it doesn’t come til it’s time to take down the decorations and get ready to go back to school, but this year I have to admit that it’s been with me all along. Maybe, […]


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The Last Gasp of Winter Break

posted Sunday January 3rd, 2010

School’s back tomorrow and, frankly, not a moment too soon. For me, at least. And for Sophie, I think. The need for structure is a pretty sophisticated thing to articulate, so she’s not saying so, but I know she has it — she shows it, every time she puts up a fight (as in, every […]


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Happy New Year from Sophie and Her BFF

posted Friday January 1st, 2010

We ended the year the best way I can imagine — with a playdate. Not just any playdate, but Sophie’s very first bonafide Mom-drops-you-off-and-you-stay-by-yourself-at-your-friend’s-house playdate. I approached it with my typical trepidation. Sarah had come to our house several times, and we’d been to her house — together — for the first time just the day […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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