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Party Hat

The Birthday Present

posted Friday January 29th, 2010

I love this story. Monday night, I made a bracelet for Sarah’s mom, Rachel. Sarah, if you have forgotten — and how could you, I talk about her all the time — is Sophie’s BFF. I love Rachel, too, and was happy to learn from Facebook that her birthday was Tuesday (happy I saw it […]


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Orthotic Art

posted Wednesday January 27th, 2010

Depsite my best (well, ok, half-hearted) attempts to love Phoenix, sometimes it doesn’t happen. But one thing I do adore about this town is how damn small it is — and when you have kids, you discover that over and over, in unexpected ways. Turns out, Sophie’s teacher’s brother-in-law runs the coolest record store in town.  […]


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Carousel

posted Tuesday January 26th, 2010

We went to the zoo Sunday afternoon, along with most of greater Phoenix. It was the perfect day — sunny but chilly enough that nothing smelled bad. You might make the giraffes your first stop at the zoo, or the zebras or the squirrel monkeys, but not our family — we hit the carousel. The girls broke […]


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Tattoo This on Your Heart

posted Monday January 25th, 2010

A few weeks ago, I mentioned that fact that my dear friend Trish took her 16-year-old son Zach to Tucson to get a tattoo. She has written an absolutely stunning piece about it for New Times. Read it. You’ll be glad you did.


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Party Hat

Stop the presses. It’s raining. Actually, at the moment sun is pouring in through the blinds in my office, but I can see some dark clouds. We’ve had inches and inches of rain in Phoenix this week, something our streets — and our psyches — just aren’t prepared to deal with. Last night Ray and I […]


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“Should Down syndrome be cured?”

posted Wednesday January 20th, 2010

Last week, New York Times blogger Lisa Belkin posed the question, “Should Down syndrome be cured?” I posted a link to her piece, but I didn’t fire off a response. I needed to give the whole thing some thought, I figured. This is fundamental.  The truth is that I will think about this for my […]


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A Tempered Response

posted Monday January 18th, 2010

Do you ever notice that a comment can be far wiser than the blog post that prompted it? I have, and more often than not, that comment has come from Elaine. We have nothing in common, really, other than daughters named Sophie (that’s how she found GIAPH a while back) but in getting to know her […]


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Competing Patterns

posted Friday January 15th, 2010

We all fall into patterns — some more flattering than others. One of my less becoming? I’ve fallen into a habit of dressing Sophie myself.  She’s perfectly capable of choosing her clothes and dressing herself (with the exception of some shoes) and yet yesterday morning I realized that there I was — half-dressed myself, harried […]


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Abbie: Drawn by Annabelle, Stitched by Amy

posted Thursday January 14th, 2010

Really, I’ve never been one to pick up a needle — even to sew on a button. I have a dim (in more ways than one) memory of Home Ec in 8th grade. But I’m really digging this embroidery thing. There is something primal about tucking a stitch onto a line — particularly when that […]


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The Fantastic Miss Sophie

posted Tuesday January 12th, 2010

I slid in just before bedtime last night, and Sophie greeted me with her usual exuberence (I wish you could all be greeted by Sophie after a long, hard day) and as usual, I asked how her day was. The response: “FANTASTIC!” Nice vocabulary word, and appropriately used, to boot.


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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