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Happy Thanksgiving, Robert Polk

posted Wednesday November 26th, 2008

This Thanksgiving, I am thankful for many things, including a man named Robert Polk. I didn’t know what to expect, when I decided to start this blog on Sophie’s fifth birthday. Ray (who rarely, if ever, reads the blog — who can blame him, he lives it) announced immediately that it would go viral. I knew […]


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Mamas, Don't Let Your Babies Watch "Charlie Bit Me"

posted Tuesday November 25th, 2008

Ms. X did not sound pleased. “Sophie had a really bad day today,” she said. We were on the phone, but I could see her shaking her head. Sophie was out of sorts all day, in ball buster mode, totally stubborn. Refused to come in from the playground, wouldn’t listen to directions. “Oh, and she […]


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Mouths of Babes

posted Sunday November 23rd, 2008

We were so eager to get Sophie talking, and now you can’t shut her up (in a good way — except for the constant WHYs, which are driving everyone in her vicinity nuts). A question from late last week, which I hope to never forget: “Mommy, what does okey dokey mean?”


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EmBEDded

posted Friday November 21st, 2008

I headed out tonight with every intention of buying Sophie a big girl bed. Her half birthday is tomorrow. It’s time. OK, it’s years late, but I’m doing it, so lay off, conscience. The only person who’s really shown any horror over the situation is Sophie’s long-time physical therapist, Dorcas. I love Dorcas. Last week […]


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Not-So-Easy Reader

posted Thursday November 20th, 2008

Last night, I sat with Annabelle and timed her for one minute while she speed-read part of a passage about squirrels. The goal, according to the Xeroxed paper that comes home each night from school, is 110 words by the end of the school year. The first night, she got 114 words. Last night (the third) […]


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Girl in a Fairy Ring

posted Tuesday November 18th, 2008

Have you ever had one of those days? Of course you have. Today I was out of sorts for no reason at all – in fact, I had many reasons to be in a great mood: Sophie’s heart is healthy. Barack Obama’s our new president. I’m not on deadline (not really, at least) with a story.The […]


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Happy Heart

posted Monday November 17th, 2008

I had just hit “publish” when my phone beeped. A text: “A+ appt. Off med. No ridilin.” Translation: Good check up. Sophie’s heart is strong enough that she no longer needs Enalapril to lower her blood pressure. But not strong enough to put up with Ritilin. Why is the route to get at what’s going on […]


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Matters of the Heart

posted Monday November 17th, 2008

“Great day, Mommy” Sophie called as Ray whisked her out the door early this morning. It’s Monday, my day to take the girls to school, but Sophie wasn’t going to school. She was going for a heart check up. This is the money shot appointment, the one that comes with an eccocardiogram. I sent Ray […]


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On the Cat(ty) Walk

posted Sunday November 16th, 2008

It’s been a high-fashion week for Annabelle. Her grandma taught her how to sew on a button (I dug up some silver lame fabric — all I had ) and she practiced several evenings in a row. And in honor of fall (i.e., temperatures below 90) we dug out what I like to call “The […]


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Paper Hearts

posted Saturday November 15th, 2008

So I’m doing this reading tonight. Don’t be offended because I didn’t invite you. I didn’t invite anyone, not really. I screwed around on Facebook, trying to post something, but I’m not sure that worked. Anyhow, I’m doing this reading. I’m reading the original version (with some tweaks) of the piece I did for This American […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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