Party Hat

R.I.P., Rose Johnson

posted Thursday June 18th, 2009

I’m not sure which time it happened — whether it was on the occasion of Sophie’s first open heart surgery, when she was four months old, or the second, when she was four years old. We were ushered into a tiny exam room at Phoenix Childrens Hospital — a pre-surgery check, it’s where they put […]


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Party Hat

Breathing Lessons, Part 2

posted Thursday February 26th, 2009

I wanted to write about the science fair today, or maybe how I’m mad at the PTA, but I figure it’s best to get all the really sad stuff off my chest now. The bad pun’s intended, sort of. These days, it’s all about lungs. For a while, in our house, it was all about hearts. […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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