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The Color Purple

posted Wednesday April 28th, 2010

Before the chasing around last Sunday at Target, even before the lemonade and pretzel and the blushing over the iced mocha, Sophie and I stood in line at the snack counter – and I took a moment to reconsider the color purple. The clerk handed me Sophie’s little cup, and offered a big container of silly straws […]


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“HEY EVERYONE! I GOT A HAIR CUT!”

posted Monday April 12th, 2010

Sophie got a haircut Saturday. Normally a haircut is not cause for bells and whistles (she needs frequent bang trims)  but this time I let the girl at Supercuts whack a few inches off the bottom. (We’d been waiting for well over an hour, I figured we might as well make it time well spent. As […]


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No Day But Today

posted Friday April 9th, 2010

Sophie has a new habit. She likes to ask me what’s next. It’s better than some of her past “tics” — telling strangers “You’re mean!” or screaming “Buy it!” in stores (my dear friend Robrt’s favorite) — but frankly, it’s wearing. Here’s how it goes: “Mommy, what day is it?” Sophie will ask — before […]


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Chris Rush: STARE

posted Thursday April 8th, 2010

Last month, I wrote a bit about Crispin Glover’s movie “What Is It?” (I’ve seen it twice and I’m still not sure — nor am I convinced the creator knows much more than I do) and talked about the notion of an artist (in this case, a film maker) depicting people with Down syndrome without […]


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More ‘Broidery

posted Tuesday April 6th, 2010

  Here is the latest joint creation to emerge from our home. It was a Sophie/Mom team effort for Trish’s birthday (just a few weeks late, sorry Trish!) depicting Sophie (on the left) and Trish’s daughter Abbie. We should all have someone in this world who loves us the way that Sophie loves Abbie. I […]


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HAPPY Passover, Indeed

posted Thursday April 1st, 2010

The other day, my dear (and hilarious) friend Tania responded to an apology-packed email (I had to reschedule a long-planned meeting) with, “Hang in there, remember our people have suffered enough!” I cracked up. As usual, Tania’s timing is perfect. It’s Passover, the week the Jews celebrate our collective suffering more than any other time of year. […]


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Happy World Down syndrome Awareness Day

posted Thursday March 25th, 2010

No, it’s not technically today. I didn’t know (or maybe I knew and forgot) that Sunday, March 21, was World Down syndrome Awareness Day. Sophie and I were waiting at the car wash when I noticed Maya had posted some lovely thoughts about Leo, in honor of the day. Whoops. I went home and told […]


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Ritardano

posted Wednesday March 24th, 2010

Annabelle has a half-hour piano lesson every Tuesday evening, and since my iPhone doesn’t work in her teacher’s studio, it’s the one time I know I can sneak in a little pleasure reading. Last night I was hustling through “The Lonely Polygamist” by Brady Udall (it’s fabulous) when something tore me away from the story. My […]


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Caramelpalooza!

posted Sunday March 21st, 2010

OK, yes, so in the Brave New World of Media as We Know It Today (but blink and it’ll change again), newspaper editors must take up event planning. At least, I must. And so, if I must, let it be a Super Cool Event. (At least I hope it will — the fantastic Georganne of […]


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Leo and Sophie

posted Saturday March 20th, 2010

Our trip to New York City was full of high points, but I have to say that the best moment came when Sophie met Leo. I walked into a busy restaurant, looked around, and suddenly, this little boy I’ve been reading about almost every day for months leapt off the computer screen and into real […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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