Party Hat

Go Ahead, Make My Day

posted Monday January 30th, 2012

I have to admit that I think Sophie’s pretty cool, but I worry all the time that you might not agree. Like when she gets ahold of my phone and calls you (repeatedly) at 6 a.m., or gets ahold of your phone and fills it with self-portraits (like the one above), or when she comes […]


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Party Hat

Cake Walk of Shame

posted Friday November 4th, 2011

“I’m praying for her,” the Cake Walk Lady stage-whispered as she dropped Sophie’s ticket in a big barrel and motioned for her to join the circle. Twenty, 30, 40 times? I lost count. We must have been at the Cake Walk a full hour by then, almost half the time allotted for the school’s fall […]


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Party Hat

Responsibility, Celebrated

posted Thursday August 25th, 2011

Funny how things happen. I wrote that last post before I took a good look at the fridge. Sophie’s third grade teacher does something that I absolultely love. She has a pouch on the wall and slips of paper on a shelf beneath. Students are asked to fill one out in honor of a classmate […]


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Party Hat

Piercing News.

posted Monday August 15th, 2011

Two bits of breaking news. 1. Annabelle got her ears pierced. I wasn’t so sure it would ever happen. We promised her she could do it when she turned 10 (only because that’s the age my mother chose for me, and it seemed as good as any) but she didn’t seem too interested — for 10 […]


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Hair by Annabelle

posted Tuesday August 9th, 2011

“Do you think we’re doing enough to make Sophie feel like it’s a special day?” Ray asked as he grabbed his stuff and headed out the door to work yesterday morning. It was a good question. Ray wasn’t sticking around for The First Day of School. But he’d taken most of last week off to […]


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Crackin’ Knuckles

posted Friday July 29th, 2011

Sophie is ready for third grade. So ready. Am I ready? That’s a different story. I’m a bit of a wreck. School starts in a little more than a week. It’s been a good summer, but in the last few days we’ve all noticed that Sophie’s grown antsy, and yesterday when she got a chance […]


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Second Grade in the Bag

posted Thursday May 26th, 2011

Earlier this week, Sophie’s teacher sent home a note asking that students bring a “sturdy” bag to school to pack up their stuff from second grade. Yesterday was Christmas in May. Along with the random spelling tests and half-finished worksheets were several treasures. Like a haiku (I had to count the syllables to be sure) called […]


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Mrs. Whatsit

posted Friday March 12th, 2010

I have started calling Sophie Mrs. Whatsit. It fits with the stream of questions — I prefer the “whys,” though they’re harder to answer, but it’s mostly “whatsits” — pouring out of her all the time, even in her sleep. (Really! Neither of us has been sleeping well; I can hear her talking in her […]


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Annabelle’s Poem

posted Monday November 16th, 2009

This weekend Annabelle began designing her “spring collection” of fashions, and also made some lovely sculptures by gluing plastic beads together. But my favorite AB creation of late is one I found last week in her “important papers” folder in her backpack. I don’t know if she wrote it for a school assignment or just […]


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Neurotic Like Me

posted Thursday August 20th, 2009

I skidded to a stop in front of the sign-out book at aftercare yesterday, threw my arms in the air and yelled, “5:59 and 24 seconds! Yes!” I scrawled my name and the time, then quickly dug into wallet for my ID. The girl behind the table just looked me, not comprehending my joy at arriving before […]


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My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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