Party Hat

Friends

posted Saturday October 9th, 2010

At the risk of sounding even cornier than usual, I need to take a minute to thank a friend. I’ve never met this friend, she lives in Vermont, on the other side of my world. I don’t even know her real name. But starrlife — mother to a pretty little girl who’s got a few […]


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Party Hat

Party Down

posted Friday October 8th, 2010

I left school yesterday morning with a knot in my stomach, for the dumbest of reasons. There were plenty of good reasons, trust me. It wasn’t because I’d had to practically peel Sophie off my leg and push her up the stairs to get her to go to class — for no particular reason. It […]


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Party Hat

Autumn Story

posted Wednesday October 6th, 2010

Watch this video. Oh please, watch this video! I know you are busy. Me, too. But my dear friend Claire sent the link over — she’s also the one who showed me how to embed video! — and I was dumbstruck. So lovely. I’m a sucker for a title, and “Autumn Story” fits today perfectly. […]


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The Song So Nice She Played It Twice

posted Sunday October 3rd, 2010

The girls had a piano recital Saturday. For Annabelle, it’s old hat — she’s had so many I’ve lost track. But this was Sophie’s first. She performed with a flourish — and, to my horror and the audience’s amusement (I hope) — performed twice. You can see for yourself. (And she’s dressed as Olivia the […]


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“Everyone has something.”

posted Wednesday September 22nd, 2010

I keep thinking about that New York Times blog post. You know, the one with the question. I have not, per Maya’s advice, gone back and read the comments on it. But I’m humbled, as usual, by the warmth and intelligence of the comments about it left here. I keep thinking about that New York […]


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Party Hat

A friend forwarded me the link to this piece today. “I’m sure you’ve already read this,” he wrote. “But just in case.” I hadn’t. Am I glad he sent it? I don’t know. It kind of pissed me off, to tell you the truth. And the more I think about it, the madder I get. […]


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Party Hat

To be honest, when I set out on my question-asking mission this week, I only had three. But I knew a fourth would come to me and sure enough, it did. “Let’s see if you can both be dressed by the time I get out of the shower,” I called to the girls this morning, […]


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Question 2: How Much Help Should a Kid Need/Get in School?

posted Wednesday September 8th, 2010

Yesterday was not Sophie’s best day. It wasn’t mine, either (I won’t bore you with details) but I looked pretty good by comparison. “It was not a good day,” Courtney told me when we met in the parking lot before piano lessons. “No one said anything to me, but I overheard something about a fight […]


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Tooth Scary

posted Tuesday August 31st, 2010

Just yesterday I was pondering cognitive tests. Last night, I got all the proof I need that Sophie’s one smart cookie. She’s had several wiggly teeth for weeks now, but there had been little action til Sunday night, when I accidentally (I swear! I felt terrible!) wiggled one a little too hard and moved it into […]


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Party Hat

That’s what they are talking about at the University of Arizona in Tucson — and they are looking for volunteers 7 and older to test their tests. I’m not typically one to offer my kids up as guinea pigs, but I’ve already emailed the researchers. Given that Sophie’s IQ has been estimated to be in […]


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My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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