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Happy Marshmallow Day

posted Friday March 29th, 2013

I read this piece earlier this month at Lit Lounge, a way cool program sponsored by the Scottsdale Museum of Contemporary Art, headed up by the amazing Tania Katan. If you haven’t been, you should go — next month’s line-up includes my friend Laurie Notaro. Go to smoca.org for details and to purchase tickets. It’s […]


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Party Hat

Good Cheer

posted Saturday March 16th, 2013

The statewide Special Olympics cheerleading competition is coming up later this week, and the members of Team Tempe are as ready as they’ll ever be. They’ve cheered at basketball games, competed in the regional competition and practiced just about every Saturday since December. A funny thing occurred to me at practice this morning: I’m going […]


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Party Hat

Scrolling through Facebook the other day, a status update caught my eye. “crowd question: so what’s a disability snob?” I can’t call the poster a friend, though we are, obviously, Facebook friends, and I’ll hasten to add that she seems like a cool person — one of the moms I’ve “met” virtually since joining the […]


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It’s Raining Cats and Dogs — and Control Freaks

posted Wednesday February 20th, 2013

She might have been on time, if not for the umbrella. Rather, the lack thereof. Here’s the thing. We live in Phoenix. We have no need for umbrellas. Even on the rare rainy day, it’s not like you’d actually walk down the street to get to your destination — instead, we race a few feet […]


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Party Hat

Whole Lotta Love

posted Friday February 15th, 2013

The other day, Sophie walked into the kitchen, threw her short arms around the knees of the man installing the cabinets in our kitchen remodel, and announced with Lena-Dunham-intensity, “Mark, I love you. You’re my valentine.” Let’s just say the two of them had not spent much time together before this moment. Mark smiled and […]


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No Restrictions

posted Sunday February 3rd, 2013

Last Tuesday morning, Sophie followed me into the bathroom, took my hand, and placed it over her One Direction pajamas, over the big bump on her chest where the bones mended — first, when she was 4 months old, then 4 years. “How does your heart feel?” I asked, smiling. “Good!” she said. “I don’t […]


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Party Hat

That Woman

posted Tuesday January 29th, 2013

“I don’t want to see that woman,” Sophie said sharply as we navigated rain puddles on the concrete path to the little park and rec classroom where they hold practice for Special Olympics cheerleading Saturday mornings. It had been a whole week, but I knew exactly who she meant. I’d been thinking about that woman, […]


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Party Hat

#downsyndrome

posted Tuesday January 22nd, 2013

I was scrolling through Instagram when the word “nigga” caught my eye.  Not something you see every day when you follow a bunch of food geeks and restaurant PR people. It was part of a screen shot of a series of text messages — made no sense, lots of gobbledygook, dumb drunk behavior, it appeared […]


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More Complicated Than That.

posted Sunday January 20th, 2013

The other night at a gallery opening, a beautiful woman I don’t know very well approached me in tears. “I need to tell you I’m sorry,” she said. “Do you know why?” I did. Back up 20 minutes. I was having a pleasant conversation with this woman and her date, a writer in from LA […]


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Are You There, God? It’s Me, Sophie

posted Thursday January 17th, 2013

“Is this a book for kids?” Sophie asked, shoving something in my face. Considering she’d already asked this morning if she could watch an episode of “Girls” on the DVR (i didn’t realize I could move that quickly before 7 a.m.) I was ready to say no. Then I looked. “Yes,” I said carefully, looking […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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