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Party Hat

All I Want for Christmas

posted Saturday December 24th, 2016

  Sophie is terrified of Santa Claus. Either that, or she’s completely full of shit. We’re less than a day out from Christmas, and I’m no closer to knowing the truth than I was the day after Thanksgiving. Yesterday we drove around visiting friends — exchanging gifts, admiring trees, sipping festive beverages — and Sophie […]


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Let’s Stick a Fork in the Term Mental Retardation

posted Friday December 16th, 2016

  The other day I took Annabelle, Sophie’s big sister, to a doctor appointment at Phoenix Children’s Hospital. The doctor recommended a flu shot and, glancing at the consent form, I noticed the term “mental retardation.” In 2016. Look, I get that in the scheme of things this is not a big deal. Frankly, I’d rather […]


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Party Hat

  Dear administrators, teachers, and staff: Before I say anything else, thank you. Thank you for creating an incredible environment for my daughter. Two and a half years ago, I sat in the audience at Sophie’s fifth grade graduation and sobbed, convinced her education (both academic and social) had come to a halt, that we’d […]


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Party Hat

The Year Without a Santa Claus?

posted Friday December 2nd, 2016

  The girls spent the night at my mom’s house on Thanksgiving. I took the opportunity Friday morning to drag all the bins marked XMAS out of the holiday closet  and burn new copies of my favorite holiday music mixes so that we’d ready to start celebrating as soon as possible. “Oh no. No Christmas […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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