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Party Hat

Sophie got braces on her teeth last week. Knowing I had a solid hour with no (or few) interruptions, I settled onto a bench behind the line of dental chairs in the fancy orthodontist’s office, put my phone on silent, and lost myself in a book about a different set of braces — the ones […]


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Party Hat

Why I Sort of Hate World Down Syndrome Day

posted Saturday March 21st, 2015

Today is World Down Syndrome Day. All week long, my Facebook feed has been filled with posts by devoted, prepared parents going to their kids’ schools to educate others about DS. They are bringing blue and yellow (the official Down syndrome colors, I’m not sure why) iced cookies, wearing blue and yellow tutus, printing tee […]


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Party Hat

Pinch Me

posted Tuesday March 17th, 2015

“Hey Mom come here, I need help with the green eyeshadow,” Sophie called from the bathroom. “Um, okay,” I said, taking in the situation, the big, blurry smears. “You want me to get it off your cheeks?” “No! I want you to put it on my eyebrows and all over my eyes,” she said, pointing […]


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Party Hat

End the R Word — And the Attitude

posted Wednesday March 4th, 2015

I don’t hear it so much anymore, so I was surprised. “I’m so retarded!” a brand-new employee said the other day, struggling to open a door with a new key card. We were coming back from lunch, and as we walked to the security office to get the key card, I’d winced a little, thinking […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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