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Party Hat

The Friend Ship

posted Tuesday January 27th, 2015

“Hey,” I said yesterday to the nanny, “I’ll give you a bonus if you find Sophie some friends at school.” It was actually several hours before it dawned on me just how fucked up that was, how fucked up I am. In my defense, I’m not alone in worrying about the friend thing. Last week […]


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Party Hat

Pointe Taken

posted Friday January 9th, 2015

This morning I found a pointe shoe on top of the dryer. I don’t know how it got there or whose it is  (not so unusual, you wouldn’t believe what I find in the bottom of my purse on a regular basis) but I do know it does not belong to Sophie. Earlier this week, I […]


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Party Hat

Tatum’s Dad

posted Wednesday January 7th, 2015

It was standing room only yesterday at Green Acres. So many people loved Steve Wiley, and they knew him as many things — record store guy, baseball coach, unconventional philospher. I knew him as Tatum’s dad. I’m sure Steve had an opinion of what it’s like to have a kid with Down syndrome, though as […]


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Party Hat

Table for One

posted Tuesday January 6th, 2015

Sophie headed off to school yesterday with a new lunch bag, a Hanukkah gift. By the time I got home — it was only 6:30 — she was passed out on the couch. It was a big day, the first day back after the holiday, she had cheer practice, and she’s just getting over the […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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