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Party Hat

R.I.P., Rose Johnson

posted Thursday June 18th, 2009

I’m not sure which time it happened — whether it was on the occasion of Sophie’s first open heart surgery, when she was four months old, or the second, when she was four years old. We were ushered into a tiny exam room at Phoenix Childrens Hospital — a pre-surgery check, it’s where they put […]


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Party Hat

KathyMonkman

posted Wednesday June 17th, 2009

Last night was pretty magical. The girls and I were invited to our dear friend Kathy’s house, to make Father’s Day gifts. As she explained to Annabelle and Sophie (and two other little girls who came along), for as long as she can remember, Kathy’s made her own father chocolate chip cookies every Father’s Day. […]


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Happy Campers

posted Tuesday June 16th, 2009

As we lounged in the tent, waiting for Ray to return with firewood, I told the girls a little story that went something like this: Once upon a time, there was a boy named Ray and a girl named Amy. When Ray was a little boy, his family loved to camp, and one of their favorite […]


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Whole Lotta Rosie

posted Monday June 15th, 2009

Friday was a very Rosy day. Our home is always pretty rosy — if not in temperament, at least in the names of its residents: Rosie the blanket, Rosy the dog and of course Annabelle Rose. (I would have named her Rosy if I could have gotten away with it.) And so when Rosy the dog got […]


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Bird by Bird

posted Thursday June 11th, 2009

“Groooooooss!” I called out to my mom, as I got out of the pool at her house the other day. “I think you have mice. Take a look.” “Yeah, I’ve seen it,” she replied, annoyed, as we gazed at what appeared to be rodent droppings on the terra cotta tile. “But what’s that tweeting I […]


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Handmade Birthday, Part Three

posted Tuesday June 9th, 2009

Sophie’s birthday party was diy. If all goes according to plan, Annabelle’s will be DIY. So far, so good. We made the invitations ourselves (okay, I admit that’s at least partly because I never can figure out any sort of photoshop-esque program on the computer). I was not surprised when Annabelle’s turned out better than mine. […]


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Illuminating

posted Monday June 8th, 2009

One last mention of the trip to New York, I promise. As I was leaving the hotel for the final time, the doorman handed me my bag and asked where I was headed. “Phoenix,” I replied, in a way that did not indicate a great deal of excitement. He got it. “Oh. I lived there […]


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Speech, speech!

posted Sunday June 7th, 2009

 This morning, Sophie was in our bed (as usual) and Ray was teasing her (as usual) and she said, clear as a bell, “Don’t attack me again, Daddy.” I sat up. Wow. “Good sentence!” I told her. Sad that typical play — whatever that is — has to be interrupted by such thoughts, but hey, […]


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Through the Looking Glass

posted Saturday June 6th, 2009

I am home. I mean it. And that’s saying something, considering I spent the last 2 and a half days in New York City, the place I always assumed I’d call home, from the time I saw Sesame Street — followed by a life-long barrage of manufactured scenes set in a city far more glamorous […]


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tweet. @girlinapartyhat. Follow me in NYC

posted Tuesday June 2nd, 2009

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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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