
Megan
posted Thursday November 11th, 2010
I’ve been thinking about Megan a lot, lately.
I don’t know much about her — only that she has Down syndrome, and she went to our elementary school for a while several years ago. I’m not even sure I’ve ever seen her, although for some reason I have a clear picture in my mind of an awkward little girl with disheveled dishwater blonde hair and round glasses, her head cocked to the side.
But Megan’s a real kid for sure, a couple years older than Annabelle, maybe even in junior high by now. She started in kindergarten at our school, just like Sophie did. And by third grade she was gone — off to the school that houses our district’s program for the mentally impaired.
That’s what happens in third grade. Those cute little kids with Down syndrome who were mainstreamed from the beginning — pinned with grand hopes of inclusion — fall behind academically, and it’s time for them to go.
Megan went.
I’m told Megan and Sophie don’t have much in common beyond dishwater blonde hair and Down syndrome, that Sophie’s “higher functioning” than the older girl, but still I can see the writing on the wall, or rather, the not-improving handwriting on Sophie’s incomplete assignment sheets, and I can bet what certain people at our school (even well-meaning people, people who love Sophie) have in mind for my little girl.
The MR room.
And that might be okay, it might be best for Sophie, it might even be that that particular program has improved dramatically since I took a tour and ran screaming from it when Sophie was 4 and we were considering elementary school options.
But I’m not sure. And to be honest, I’m also not sure that my feelings about this whole thing aren’t more emotional than practical — more social than academic. A couple weeks ago, we attended our school’s fall festival. Both my girls had fun, but Sophie truly had a blast. She hung out with her best friend Sarah, which was cool; but even better, everywhere we went, everyone knew Sophie. She knew them. And not just to give stereotypical DS hugs. This is Sophie’s world. She travels it effortlessly (I don’t kid myself that some days are harder than others, but still) and she thrives in it.
I feel so guilty. I feel guilty because in some ways, I worry I’ve set her — set us — up for failure and disappointment. I knew academics would get tougher, I know the school is unprepared, in so many ways, to keep Sophie, and yet I got attached. I got Sophie attached.
Now what?
The other night, when Annabelle was finding every excuse in the book to avoid her homework, I told her, “You put the `pro’ in procrastination.” I should know – too bad procrastinating’s not an Olympic sport. I’d win. But this time, for once, I’m not wasting time.
That special ed lawyer I mentioned last week? She came to the house this morning, to meet us, review Sophie’s IEP and talk about options. Things aren’t so bad, she told me, after our chat. I know, I replied. But I need to be ready for third grade. Sophie needs to be ready.
I owe it to Sophie to figure out the very best place for her, and to get her all the resources she deserves. And if that means showing up at the next school meeting with an attorney (albeit a gentle-seeming one) I’ll do it. I’ve looked for years for just the right advocate; today I think I found her. (And if you live in metro Phoenix and you want her contact information, email me and I’ll be happy to give it to you.)
This woman spent two hours with us. She reviewed Sophie’s goals, her test scores, her drawings, talked to Sophie — even submitted to a spelling test by Sophie — and asked her good questions. Asked me good questions, too. She talked about the resources Sophie will need to do well in third grade; she doesn’t think it’s so much, or too much to ask for. It’s true, Sophie’s reading at grade level. Her test scores aren’t bad. The lawyer left me with a managable “to do” list.
She was impressed with Sophie, even though when she asked her what she want sto be when she grows up, Sophie told her she wants to be a whoopie cushion. (What happened to wanting to be a phlebotomist? I asked in dismay. Sophie just smiled.)
At the end of the fall festival, we drove Sophie’s friend home. “I love you, Sophie!” Sarah called as she ran from the car to her house, saying it so naturally, so sincerely.
“I LOVE YOU BFF!!!!!” Sophie screamed back, full of more emotion than I thought any creature could hold.
I don’t know if Megan had a BFF at our school, or if she has one now. My mom told me the other day — always trying to make me feel better — “Remember, Sophie makes friends easily. No matter where she winds up, she’ll be okay.”
I know she’ll be okay. But I also know we all want her to be more than okay. I’m just not sure how to make that happen. At least we have a little time to try to figure it out.