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The Spaces in Between

posted Saturday March 3rd, 2018

    It was a pretty Arizona winter night. The church grounds felt like they went on for acres, probably because they did, and as I waited I tried to distract myself by wondering how much this North Scottsdale real estate is worth. A lot. Modestly dressed middle-aged congregants gathered outside in a courtyard, lining either side […]


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  So far, I have not failed at high school. This morning — the first back after the two-week winter break — Sophie popped out of bed, drank her Carnation Instant Breakfast, and chose a cute new outfit. She refused to brush her hair, but found her ID, remembered her lunch, and cranked Stevie Wonder, […]


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The Airing of Grievances

posted Wednesday December 6th, 2017

Sophie’s lawyer asked me to write down some concerns in anticipation of her annual IEP meeting next week. (IEP stands for Individualized Education Plan — the living legal document that guides/dictates the educational life of a kid with a disability.) I smirked. Perfect timing for an airing of grievances. I started this blog to catalog […]


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Gratitude Mix 2017

posted Monday November 20th, 2017

Election results burning in my ears, last November I made a mix tape called “Gratitude.” The idea was to ratchet back the hate and give some thanks, but by the second or third song I’d pulled out R.E.M.’s “It’s the End of the World as We Know It” and wasn’t looking back. This year my Gratitude […]


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Down Syndrome Awareness Month Was a Bust. Now What?

posted Thursday November 2nd, 2017

  Down Syndrome Awareness Month was a bust this year. For Sophie and me, anyway. Okay, that’s not exactly true. In a lot of ways, October was a terrific month, particularly when it came to educating others about Down syndrome. I got a piece published on the New York Times parenting site, and I traveled […]


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  Dear  Teachers, Staff, and Students: Welcome back from Fall Break! I can’t believe an entire quarter of the school year has already flown by. By now you might have met my daughter, Sophie, who is a freshman. If not, maybe you’ve seen her in the halls, at cheer tryouts, or singing at the school’s recent […]


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    Sophie is trying out for freshman cheer. Sitting under the fluorescent lights of a big public high school gym for two hours yesterday afternoon, my thoughts veered wildly — from total disgust with our society for condoning (no, make that celebrating) the idea that it’s cool for girls to put on skimpy outfits and […]


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Maya was my first real friend who also happened to have a kid with Down syndrome, made difficult but not impossible by the fact that she lived on the other side of the country. And we’d never met. We found one another’s blogs many years ago, when our kids (her son, my daughter) were barely […]


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Listen to Each Other’s Stories

posted Thursday June 29th, 2017

  A couple of things are clear. Eventually, the U.S. Senate will vote on so-called health care reform. And it won’t be pretty. Maybe it won’t be as bad as we think, maybe they won’t cut 22 million people from the rolls. Or maybe it will be worse. I write a lot about Down syndrome, […]


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A Midnight Summer’s Dream Come True

posted Tuesday May 2nd, 2017

The reviews are in for this morning’s eighth grade production of “A Midsummer Night’s Dream,” or, as Sophie kept calling it all semester, “A Midnight Summer’s Dream.” The production was nothing fancy, held in the library of the public middle school Sophie attends, during first hour drama class. Costumes were makeshift, sets pretty much didn’t […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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