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Party Hat

The R-Word Police

posted Friday December 2nd, 2011

I do not relish my role as the R-word police. I particularly do not enjoy calling it the R-word (if you are not versed in this subject, the R-word s “retard”). I much prefer picking on people for punctuation than word choice — after-fucking-all, I work at an alt weekly, the kind of fucking place […]


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Party Hat

I do have to thank Jason Rose for one thing. He reminded me this week that it’s time to register Sophie for the Special Olympics. Over the weekend, Rose — who has been in public relations in Phoenix for as long as I’ve been in journalism (read:  a long time) — tweeted the following football/hockey commentary: usc-ucla? Felt like […]


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Party Hat

Good Fortune

posted Thursday November 17th, 2011

I took Sophie to the mall the other night. To be honest, I really didn’t want to. It wasn’t a particularly entertaining errand — one of the nose pieces on her glasses snapped in half and cut her nose before we realized what was going on — and I figured it wouldn’t be much fun […]


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Party Hat

Heart Strings

posted Tuesday November 15th, 2011

Some anniversaries you’d rather not remember. I know Sophie’s second heart surgery was sometime in early November — right around now, in fact — but I don’t recall the exact date. I don’t think about it much, even when I see the several-inch-long “zipper” on her chest, but for some reason, almost every time I […]


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Party Hat

Cake Walk of Shame

posted Friday November 4th, 2011

“I’m praying for her,” the Cake Walk Lady stage-whispered as she dropped Sophie’s ticket in a big barrel and motioned for her to join the circle. Twenty, 30, 40 times? I lost count. We must have been at the Cake Walk a full hour by then, almost half the time allotted for the school’s fall […]


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Party Hat

There’s a video news clip making the rounds on Facebook this week — I’m not sure why it’s popped up now, but it’s your typical feel-good story that everyone always seems eager to share so I guess it’s not too surprising. The lull between Halloween and Thanksgiving, maybe. Some group called Success Nation is passing it […]


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Party Hat

Are You There God? It’s Me, Amy

posted Monday October 24th, 2011

The other day, my mother announced that Annabelle had recently announced to her that Annabelle’s glad we don’t make her go to temple because she doesn’t believe in any of that stuff — at all — and I knew that the window had definitely shut. Aside from a little guilt, I’m fine with that. I remember the […]


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Party Hat

The Most Self-Indulgent Blog Post Ever Written

posted Monday October 17th, 2011

“Oh, one more thing,” I said, wrapping up a phone call with a young friend from work this afternoon. “You have GOT to go see Dolphin Tale. Promise me you will. It’s amazing. I just saw it.” Was that a snicker I heard on the other end of the phone? “Um, yeah, sure,” she said, […]


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Party Hat

Back to It.

posted Monday October 17th, 2011

“Sophie’s being a real ballbuster today,” I confided in my mom on the phone yesterday morning — in what I thought was a low tone, masked by the car radio. “No, your daughter’s the ballbuster!” Sophie fired from the back seat, making sure she said it loudly enough for her grandmother to hear. I cracked […]


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Party Hat

Baby’s First Embroidery

posted Thursday October 6th, 2011

Look what Sophie did — all by herself. OK, she did have some guidance from her amazing physical therapist, but really, I’m told, she did all the stitching on her own. “M” for Mommy. (Sorry — Hipstamatic washed out the purple M a bit.) She also did an “S” for Sophie and has plans for “A” (Annabelle) […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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