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Party Hat

Blind (Play)Date

posted Saturday February 25th, 2012

Sophie has a playdate with a new friend today. This is incredibly nerve wracking. Not for Sophie. She’s over the moon. She popped up this morning before sunrise and announced, “Today’s my playdate!” “Good,” I said, covering my head with the blankets. “Go clean your room to get ready.” And for the first time in […]


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Party Hat

Love is all you need.

posted Tuesday February 14th, 2012

The other day I kissed Sophie and said, “I love you.” She kissed me back. Right on the lips, the type of kiss I’m normally opposed to unless it’s from someone to whom I’m married. “I love you, too, Mommy,” she said, and hugged me hard. She leaned back and looked at me, like she was trying […]


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Party Hat

Elmo’s World. Still.

posted Thursday February 9th, 2012

There are some battles I’m just not ready to wage before 7 a.m. Particularly when my opponent is an 8-year-old armed with an iPad loaded with images of Elmo birthday cakes. “Ray,” I called from the kitchen this morning, as he hustled to get ready for the day, “will you please explain to Sophie why […]


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Party Hat

Go Ahead, Make My Day

posted Monday January 30th, 2012

I have to admit that I think Sophie’s pretty cool, but I worry all the time that you might not agree. Like when she gets ahold of my phone and calls you (repeatedly) at 6 a.m., or gets ahold of your phone and fills it with self-portraits (like the one above), or when she comes […]


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Party Hat

Annabelle’s making friends at school. She’s taken her time, she’s so wise. Or shy. Whatever. In any case, I hadn’t thought about what it would be like for her to introduce her new friends to Sophie til she got in the car this afternoon and announced that a friend had asked Annabelle why she’s so […]


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Party Hat

A Retarded Conversation

posted Friday January 13th, 2012

The phone rang early this morning. It was my friend Deborah. “Hey, sorry I didn’t call earlier in the week,” she said. “I’ve been snowed in.” “Literally or figuratively?” I asked, still half-asleep even though I’d been up long enough to make two Carnation Instant Breakfast shakes, a pot of coffee, a sack lunch and a […]


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Party Hat

Bullseye!

posted Sunday January 8th, 2012

A few weeks ago, I had lunch with a good friend who happens to have a special needs child — make that special needs adult, this kid is about to graduate from high school. Suffice to say, my friend knows her way around the block. “You’re getting the pass for Sophie, right?” she asked when […]


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Party Hat

Suspended Animation

posted Tuesday December 27th, 2011

We’re going to Disneyland soon, and Sophie’s hoping we see the new Disney princess, the purple-loving, blue-eyed Sofia I read about a couple weeks ago. Yes, there’s a new Disney princess, and she and Sophie have a lot in common. When Sophie mentions Sofia, I change the subject. I never should have brought it up. […]


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Party Hat

Sophie’s Letter to Santa (Final Draft, Dictated)

posted Monday December 12th, 2011

Dear Santa, I love you. You’re the best Santa Claus I ever had. I love Christmas. I want paintbrushes and baby stuff, too. We are watching Elf right now and I saw you on Elf. But you are fake on Elf. What’s your favorite color and what’s all the reindeers’ names and I love you […]


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Party Hat

Sophie Takes the Stage

posted Monday December 5th, 2011

I heard a small voice behind me. “Where’s Sophie?” I’d been wondering if anyone would ask. It was almost halfway through the Saturday night performance of the Snow Queen, and the sprites — already covered in green glitter, hair teased in ponytails all over their little heads – were putting on their unitards and wings, getting ready for their […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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