Party Hat

No Restrictions

posted Sunday February 3rd, 2013

Last Tuesday morning, Sophie followed me into the bathroom, took my hand, and placed it over her One Direction pajamas, over the big bump on her chest where the bones mended — first, when she was 4 months old, then 4 years. “How does your heart feel?” I asked, smiling. “Good!” she said. “I don’t […]


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Party Hat

(Sticker) Charting the Course

posted Friday January 27th, 2012

Live by the sticker, die by the sticker. That’s how it seems in our world — Sophie’s world — these days. Sophie was not behaving at school last fall, so her “team” started a daily sticker chart. For now, anyway, it works like a dream. Particularly when it’s a Justin Bieber sticker she’s getting. But it’s not just […]


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Party Hat

Home Remedy

posted Friday September 25th, 2009

Home Remedy. That was the assignment for last night’s Mothers Who Write class — the workshop I’ve co-taught for years with my dear friend Deborah Sussman Susser. We wanted our students to write about health care, but frankly, we weren’t interested in 15 essays about health care reform. So the ever-wise Deborah came up with […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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