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King of Hearts

posted Friday July 27th, 2012

Many years ago, my colleague Paul Rubin profiled a local pediatric cardiac surgeon for our paper, Phoenix New Times. The headline was “Prince of Hearts.” But to me, it’s Paul who’s the prince of hearts. Maybe even the king. You should read his article about Michael Teodori. It’s a wonderful piece of journalism, well written and the […]


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Kindergarten Flashback

posted Wednesday July 18th, 2012

My friend Cate’s daughter Abby is staring kindergarten this fall, and watching the preparation play out in Facebook posts over the last few weeks brought me back. Like Sophie, Abby has Down syndrome. Like me, Cate had to fight to get Abby into the school that her older child (who, like Annabelle, does not have […]


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For My 11-Year-Old Annabelle: Things to Worry About

posted Tuesday July 10th, 2012

I spotted this list on Frances’ blog a few weeks ago, and made a note to share it today, Annabelle’s 11th birthday. Apparently F. Scott Fitzgerald’s daughter, Scottie, grew up and wrote for The New Yorker and The Washington Post — and avoided her parents’ mental illness. Sounds pretty good to me. And so here […]


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“Smart Enough… to Know”

posted Thursday July 5th, 2012

It’s sharing week here at GIAPH…. Tuesday I showed you Trish’s poem. Today, here’s her lovely daughter Abbie’s English paper — she was asked to write about a “compelling person” in her life. Abbie, who is 17, chose Sophie. Abbie has known both my girls since they were days (hours?) old — and it shows. […]


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From time to time over the years, the folks at KJZZ — the NPR affiliate here in Phoenix — have been kind enough to allow me to share some of my stories about Sophie. Typically, these pieces end on a high note. Not this one. You can read it or listen to it here. (And […]


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“Sophie, who is eight but crawls”

posted Tuesday July 3rd, 2012

Except for the occasional limerick, which does not count, I do not write poetry. I’m too self-conscious, too aware that this is not a medium for a dabbler. You’ve got to really know what you’re doing to write a good poem. (Or be really lucky.) But I do know a good poem when I read […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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