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Party Hat

No Day But Today

posted Friday April 9th, 2010

Sophie has a new habit. She likes to ask me what’s next. It’s better than some of her past “tics” — telling strangers “You’re mean!” or screaming “Buy it!” in stores (my dear friend Robrt’s favorite) — but frankly, it’s wearing. Here’s how it goes: “Mommy, what day is it?” Sophie will ask — before […]


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Party Hat

Chris Rush: STARE

posted Thursday April 8th, 2010

Last month, I wrote a bit about Crispin Glover’s movie “What Is It?” (I’ve seen it twice and I’m still not sure — nor am I convinced the creator knows much more than I do) and talked about the notion of an artist (in this case, a film maker) depicting people with Down syndrome without […]


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Charity

posted Wednesday April 7th, 2010

The girl was struggling with some math. “Hey,” she finally called to a co-worker, “what’s half of $5.98?” I knew it was a bad idea to ask the cashier to honor the “buy an adult entree and get a kid meal free deal,” but there were signs everywhere. It seemed weird not to mention it. […]


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More ‘Broidery

posted Tuesday April 6th, 2010

  Here is the latest joint creation to emerge from our home. It was a Sophie/Mom team effort for Trish’s birthday (just a few weeks late, sorry Trish!) depicting Sophie (on the left) and Trish’s daughter Abbie. We should all have someone in this world who loves us the way that Sophie loves Abbie. I […]


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My Hero

posted Monday April 5th, 2010

This morning I was racing around, Monday-style — trying to unearth suitable items for the lunch boxes and figure out how much Sears would charge to come out and look at our broken (again!) dryer — when I realized that Annabelle was reading to Sophie. That’s not such an uncommon occurence, but I felt a […]


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Have a Cute Easter

posted Sunday April 4th, 2010


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HAPPY Passover, Indeed

posted Thursday April 1st, 2010

The other day, my dear (and hilarious) friend Tania responded to an apology-packed email (I had to reschedule a long-planned meeting) with, “Hang in there, remember our people have suffered enough!” I cracked up. As usual, Tania’s timing is perfect. It’s Passover, the week the Jews celebrate our collective suffering more than any other time of year. […]


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My-Heart-Cant-Even-Believe-It-Cover
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
Changing Hands Bookstore
. For information about readings and other events, click here.
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