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	<title>Girl in a Party Hat &#187; why do i have down syndrome?</title>
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		<title>&#8220;Mommy, why do I have Down syndrome?&#8221;</title>
		<link>http://girlinapartyhat.com/index.php/2012/03/mommy-why-do-i-have-down-syndrome/</link>
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		<pubDate>Wed, 07 Mar 2012 17:25:26 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[why do i have down syndrome?]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=4091</guid>
		<description><![CDATA[It came, as most of the hard questions do, from the back seat. This one was, perhaps, the hardest of all. &#8220;Mommy, why do I have Down syndrome?&#8221; Sophie and I had just left Special Olympics practice, so I wasn&#8217;t completely surprised that the topic came up &#8212; we&#8217;re almost never around groups of people [&#8230;]]]></description>
				<content:encoded><![CDATA[<p>It came, as most of the hard questions do, from the back seat. This one was, perhaps, the hardest of all.</p>
<p>&#8220;Mommy, why do I have Down syndrome?&#8221;</p>
<p>Sophie and I had just left Special Olympics practice, so I wasn&#8217;t completely surprised that the topic came up &#8212; we&#8217;re almost never around groups of people with Down syndrome, and there were a dozen or so out for track and field that afternoon. I just expected that when the first questions came, they would be more of the &#8220;what&#8221; or &#8220;who&#8221; variety, rather than &#8220;why.&#8221; I will admit that I was completely unprepared. She&#8217;s only 8. I figured I had a few years.</p>
<p>&#8220;Uh, um, err&#8211;&#8221; I sputtered. &#8220;I don&#8217;t know.&#8221;</p>
<p>Before Sophie could protest, I followed up with all I could scrape from my end-of-the-day-tired brain.</p>
<p>&#8220;So when you were just becoming a baby, some science happened and it made you have Down syndrome.&#8221;</p>
<p>That was terrible, but it seemed to satisfy her.</p>
<p>&#8220;Oh, like the science fair!&#8221; she said, excited, and quickly changed the subject with a question I honestly can&#8217;t recall at the moment, something on her current rotation: &#8220;When can I get a Monster High doll?&#8221;; &#8220;When can I have a sleepover with Gaga?&#8221;; &#8220;Why isn&#8217;t it my spring break yet?&#8221;; &#8220;How many days til my birthday?&#8221;</p>
<p>Back to comfortable (if slightly annoying, after a dozen times) territory. I turned up the Disney channel on the radio and let the whole thing play out in my head, again and again.</p>
<p><em>&#8220;Mommy, why do I have Down syndrome?&#8221;</em></p>
<p><em>&#8220;Well, Sophie, it&#8217;s because Mommy was selfish and waited til she was 36 years old to have you. You have an old mom with old eggs.&#8221;</em></p>
<p><em>&#8220;Oh, Sophie, I&#8217;ve wondered that myself. Perhaps the universe was trying to <span style="text-decoration: line-through;">punish me</span> tell me something.&#8221;</em></p>
<p><em>&#8220;You see, Sophie, you have a genetic condition called Trisomy 21, in which you have an extra 21st chromosome, which affects just about part of you. If you&#8217;ve got an hour, I can start listing the many ways.&#8221;</em></p>
<p><em>&#8220;Fuck if I know, Sophes.&#8221; </em></p>
<p>Annabelle got in the car, and asked her sister how Special Olympics went.</p>
<p>&#8220;Good!&#8221; Sophie told her.</p>
<p>&#8220;Hey, Sophie, did you notice there are a lot of people at Special Olympics with Down syndrome?&#8221; I asked.</p>
<p>&#8220;Yes.&#8221;</p>
<p>&#8220;What do you think of that?&#8221;</p>
<p>&#8220;I like it.&#8221;</p>
<p>&#8220;Why?&#8221;</p>
<p>&#8220;Because they are nice.&#8221;</p>
<p>Later I told Ray about the conversation.</p>
<p>&#8220;You know,&#8221; I said, &#8220;maybe it&#8217;s like meeting someone from your own planet. Maybe she feels really comfortable around them &#8212; like they are her people.&#8221; Maybe she wonders why life is so hard all the time, why she doesn&#8217;t quite get it when she&#8217;s around us, her nuclear family. Maybe these people are really her family. Does she think that?</p>
<p>&#8220;No,&#8221; said Ray, who&#8217;s read more (as in, anything) on the subject than I have. He says people with Down syndrome are not really capable of that kind of thinking.</p>
<p>I&#8217;m not so sure.</p>
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