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	<title>Girl in a Party Hat &#187; vision therapy</title>
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		<title>Vision Therapy</title>
		<link>http://girlinapartyhat.com/index.php/2010/05/vision-therapy/</link>
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		<pubDate>Thu, 20 May 2010 17:05:15 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[health]]></category>
		<category><![CDATA[the future]]></category>
		<category><![CDATA[vision therapy]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=2531</guid>
		<description><![CDATA[Vision therapy. Now, that&#8217;s something I think all new parents &#8212; particularly parents of kids with Down syndrome &#8212; could use. A little coaching through the process of envisioning the future, jumping ahead, fretting over something that might (or might not) happen years or decades from now. But that&#8217;s not what I&#8217;m talking about here. [&#8230;]]]></description>
				<content:encoded><![CDATA[<p>Vision therapy.</p>
<p>Now, that&#8217;s something I think all new parents &#8212; particularly parents of kids with Down syndrome &#8212; could use. A little coaching through the process of envisioning the future, jumping ahead, fretting over something that might (or might not) happen years or decades from now.</p>
<p>But that&#8217;s not what I&#8217;m talking about here.</p>
<p>Last October, Sophie passed her vision test with relatively flying colors. (What are flying colors, anyway?) She&#8217;s a little far sighted and has an astigmatism, just like me (well, not exactly like me, I was wearing glasses at 4, she doesn&#8217;t have them &#8212; yet) but no serious problems, the doctor reported. We do have the clogged tear duct issue, but that&#8217;s a separate thing.</p>
<p>Clearly separate from what happened just a couple weeks after Sophie passed that vision test in October. Her physical therapist asked, &#8220;Do you notice Sophie cocking her head to one side when she reads, or focuses on something?&#8221;</p>
<p>Come to think of it, yes. It started after that appointment, though, so I hadn&#8217;t asked the doctor about it. The PT talked about referring Sophie to a developmental eye doctor or therapist. Then Sophie&#8217;s occupational therapist brought it up. She was even more concerned &#8212; talked about Sophie &#8220;lacking vision&#8221; in certain places.</p>
<p>Crap. Somehow (and here&#8217;s where I need my own form of vision therapy) my mind raced ahead to surgery, which no one had mentioned but still, I figured, was inevitable. So I did what I do best: I put my blinders on.</p>
<p>This went on for months. The PT and the OT were insistent, so I finally made an appointment with the opthamologist. Again. Good timing; the school nurse left a message the day before the appointment, expressing her concern about the cock-eyed thing.</p>
<p>OK, OK, we&#8217;ll take care of it. Well, maybe. Why can&#8217;t anything be simple? Turns out, the therapists want Sophie to have &#8220;vision therapy.&#8221; And, it turns out, vision therapy is quite controversial &#8212; I know parents who have been through it with their kids, and were disgusted by the expense and lack of results. Yet I have incredible faith in our PT and OT. And Sophie IS cock-eyed. You&#8217;ve probably noticed it in recent pictures, the way her eyes wander up and to the side.</p>
<p>The appointment was yesterday. Ray insisted on taking her, which was nice, since I&#8217;m having a particularly bad week at work. Before they left yesterday morning, I repeated the concerns several times.</p>
<p>&#8220;I&#8217;ve never seen her do that,&#8221; Ray said.</p>
<p>Seriously? And it&#8217;s not like he doesn&#8217;t read with her and play with her. In the end, the appointment wound up being two seconds of cock-eyed vision therapy (&#8220;We don&#8217;t believe in vision therapy,&#8221; the doctor told him) and an hour of removing the tubes from Sophie&#8217;s eyes &#8212; placed there years ago, to try to unblock her blocked tear ducts.</p>
<p>She still doesn&#8217;t need glasses, Ray reported. They gave her a thorough vision test. The doctor pooh-poohed the cock-eyed thing entirely. To be fair to the doctor, Ray didn&#8217;t push the issue.</p>
<p>&#8220;Did you have her read a book for the doctor?&#8221; I asked.</p>
<p>No, he said, because he had Sophie read a book for him before the appointment and she didn&#8217;t cock her head a bit.</p>
<p>&#8220;I think you&#8217;re too focused on this,&#8221; he said.</p>
<p>Maybe. And the therapists think I&#8217;m not focused enough. Why do I constantly find myself in this position &#8211; right in the middle, failing on both sides? Tomorrow is Sophie&#8217;s birthday. I desperately need to be at work. But how can I not be there to pick her up at 1:30 from school? It&#8217;s her BIRTHDAY. Then again, the most insistent therapists will be seeing her at the house tomorrow after school; she&#8217;ll be horrified that nothing happened at that appointment. Maybe I should hide at work.  </p>
<p>So now what? Seriously, folks, I&#8217;m putting this one out here with the hope that as always, you&#8217;ll share your sage advice. Not about whether or not I should go to work tomorrow, of course. What do you think about vision therapy?</p>
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