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	<title>Girl in a Party Hat &#187; thyroid problems in kids with Down syndrome</title>
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		<title>There Will Be Blood (Tests)</title>
		<link>http://girlinapartyhat.com/index.php/2010/08/there-will-be-blood/</link>
		<comments>http://girlinapartyhat.com/index.php/2010/08/there-will-be-blood/#comments</comments>
		<pubDate>Wed, 18 Aug 2010 01:08:17 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[blood tests]]></category>
		<category><![CDATA[thyroid problems in kids with Down syndrome]]></category>

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		<description><![CDATA[They took Sophie&#8217;s blood last Friday. It made quite an impression. After a false start with a less-qualified tech (and some screaming), a very kind woman named Alice coaxed Sophie into the chair and before either of us knew it, had the blood flowing. That&#8217;s a gift. So&#8217;s the connection this lady made with my little girl. [&#8230;]]]></description>
				<content:encoded><![CDATA[<p><a href="http://girlinapartyhat.com/wp-content/uploads/2010/08/sophie-blood.jpg"><img class="alignnone size-full wp-image-2885" title="sophie blood" src="http://girlinapartyhat.com/wp-content/uploads/2010/08/sophie-blood.jpg" alt="" /></a></p>
<p>They took Sophie&#8217;s blood last Friday. It made quite an impression. After a false start with a less-qualified tech (and some screaming), a very kind woman named Alice coaxed Sophie into the chair and before either of us knew it, had the blood flowing.</p>
<p>That&#8217;s a gift. So&#8217;s the connection this lady made with my little girl.</p>
<p>Two days later, Sophie had a question from back seat. (She&#8217;s full of questions these days: during that particular car ride she also wanted to know &#8220;how they make&#8221; cars, seat belts, paintbrushes and toothbrushes. And she was not at all satisfied with the answer &#8220;In a factory.&#8221; I had to promise to look it up on youtube. I love that the &#8220;make&#8221; lightbulb has clearly gone off over her head, but given my own dim bulb status, it&#8217;s going to take some effort to explain such things. Thank goodness for my know-it-all husband.)</p>
<p>&#8220;Mommy,&#8221; Sophie asked, &#8220;What&#8217;s the name of the person who took my blood?&#8221;</p>
<p>&#8220;Alice.&#8221;</p>
<p>&#8220;No! What&#8217;s the name of the person who took my blood?&#8221;</p>
<p>&#8220;Alice.&#8221;</p>
<p>&#8220;NO!!!!&#8221;</p>
<p>This went on for a few blocks til I finally caught on.</p>
<p>&#8220;Um, you mean a phlebotomist?&#8221;</p>
<p>&#8220;Yes! That&#8217;s what I be when I grow up!&#8221;</p>
<p>I got a good chuckle out of the misunderstanding, which was good because I wasn&#8217;t laughing much over that topic, this past weekend. I&#8217;ll spare you the details, but in a nutshell I had a panicked message from the pediatrician&#8217;s office Saturday morning, informing me Sophie&#8217;s glucose was low and that Sophie must fast and we must report for more tests Monday at 8:30 a.m. The tech (not my beloved Alice) promised to call back with more details. She didn&#8217;t.</p>
<p>So by the time I received another message &#8212; after the second blood test, informing me that Sophie must seen an endocrinololgist, immediately! &#8212; I was completely convinced my kid was diabetic.</p>
<p>Turns out, after several more phone calls (including one in which a pediatrician &#8212; not my own &#8212; announced cheerfully, &#8220;This was sure a comedy of errors!&#8221; before bothering to share any news regarding my kid&#8217;s health) I learned that Sophie&#8217;s thyroid is off, somewhat. She is not diabetic. The thyroid thing is something all parents of kids with DS dread and expect, so while I wasn&#8217;t thrilled I was on more stable ground by Monday afternoon, and trust me, that pediatrician will never tell the worried-sick parent of a potentially-sick child that anything is a &#8220;comedy of errors&#8221; again. </p>
<p>(The woman actually <em>wept</em> on the phone. And then I had to comfort her. My sister the social worker suggests a different profession for the pediatrician.)</p>
<p>I do feel badly for making someone cry, and worse for worrying myself sick. There&#8217;s plenty more to worry about on the horizon, I know that. There will be more blood tests.</p>
<p>For now, Sophie is enthralled, and will submit happily. The other night we played phlebotomist for an hour before I finally had to tell her to stop with the cotton ball and the big rubber band. Some day, she won&#8217;t be so thrilled. I hope Alice is around for a long time.</p>
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