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	<title>Girl in a Party Hat &#187; school wax museum</title>
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		<title>Wax Museum</title>
		<link>http://girlinapartyhat.com/index.php/2014/04/wax-museum/</link>
		<comments>http://girlinapartyhat.com/index.php/2014/04/wax-museum/#comments</comments>
		<pubDate>Tue, 29 Apr 2014 19:29:48 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[school wax museum]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5097</guid>
		<description><![CDATA[The other day Sophie, Ray and I went for a walk. Sophie walked between us, and one point reached out and grabbed each of our hands. &#8220;Will we go for walks like this our whole lives?&#8221; I asked, saying it as much to myself as to Sophie. &#8220;No,&#8221; she said matter-of-factly. &#8220;I&#8217;ll go for walks [&#8230;]]]></description>
				<content:encoded><![CDATA[<p>The other day Sophie, Ray and I went for a walk. Sophie walked between us, and one point reached out and grabbed each of our hands.</p>
<p>&#8220;Will we go for walks like this our whole lives?&#8221; I asked, saying it as much to myself as to Sophie.</p>
<p>&#8220;No,&#8221; she said matter-of-factly. &#8220;I&#8217;ll go for walks with my husband and our kids and our dogs.&#8221;</p>
<p>&#8220;Sounds good to me,&#8221; I said, smiling over her head at Ray. Hey, it could happen. &#8220;So who will you marry, Sophie?&#8221;</p>
<p>&#8220;Niall from One Direction,&#8221; she said a little impatiently. (We&#8217;ve been over this before.)</p>
<p>&#8220;So you don&#8217;t want to marry someone with Down syndrome?&#8221;</p>
<p>&#8220;Yes, if Niall from One Direction has Down syndrome.&#8221;</p>
<p>Got it. Sophie&#8217;s hot and cold on the DS thing. Sometimes she&#8217;ll see a person at the mall she thinks has it (this becomes awkward when the person does not) and want to approach them to ask. She has a couple girl crushes at Special Olympics. And she adored the leads in Detour Theater Company&#8217;s production of &#8220;Hairspray&#8221; a few months ago. (Detour is our local theater company for adults with developmental disabilities.)</p>
<p>Still, I was surprised when she announced who she wanted to be for the fifth grade wax museum. Every year, each fifth grader at Sophie&#8217;s school chooses a character to portray. I believe it&#8217;s supposed to be a historical figure, but apparently it&#8217;s good enough if it&#8217;s a real person, because Sophie came home yesterday ready to research Lauren Potter.</p>
<p>I didn&#8217;t recognize the name right away either. Lauren Potter plays Becky, the character on the popular (and somewhat inappropriate) television show Glee.</p>
<p>&#8220;Why do you want to be her?&#8221; I asked Sophie.</p>
<p>&#8220;Because she&#8217;s Down syndrome and she&#8217;s a cheerleader!&#8221;</p>
<p>&#8220;<em>Has</em> Down syndrome,&#8221; I said under my breath.</p>
<p>I asked about two of Sophie&#8217;s best girlfriends. One is going to be Anne Frank; the other, Justin Bieber.</p>
<p>Did you know that there&#8217;s a special Wikipedia-like Glee web site? There is. I now know that Lauren Potter&#8217;s favorite color is red and her favorite book is Twilight.</p>
<p>&#8220;She wears glasses like me and likes spicy food &#8212; just like Daddy!&#8221; Sophie announced this morning, carefully going through the several-page entry.</p>
<p>I bought the costume on eBay; later we&#8217;ll get a presentation board and put together details of Potter&#8217;s life. Much of her resume details her advocacy work. I bet she&#8217;d be pleased that Sophie wants to portray her. Or would she be?</p>
<p>&#8220;Look!&#8221; Sophie said, pointing to Lauren Potter&#8217;s photo. &#8220;We look alike!&#8221;</p>
<p>Yes &#8212; and no. For so long, I&#8217;ve wanted to Sophie to be comfortable having Down syndrome, to relate to others with it. Now she shows a sign that she is, and it makes me feel uneasy, like she&#8217;s settling, ready to be typecast. Why can&#8217;t she dream about marrying Niall? When I was her age, I wanted to marry Shaun Cassidy (okay, I might have been a little younger) and I didn&#8217;t have to worry about his genetic make-up.</p>
<p>As usual, I need to get over myself.</p>
<p>Unlike a museum, our world is full of moving parts. A work in progress. Nothing is set in stone &#8212; or wax.</p>
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